Blood exams
Hello, Our CF 20-month-old son had several blood tests. For several months (approximately one year), platelets are elevated (700-800G) as well as white blood cells (more specifically lymphocytes: 10G). Can you explain us what it means? What is the impact on the prognostic level? Thank ...
Practical year medicine in case of CF
My son is 24 years old and studies (with empathy) medicine. In summer he will do his second state exam. His health status is relatively stable, on the other hand he is getting easliy ill in case of a high physical burden. He is actually very afarid of the practical year, especially concerning the ...
Reverse osmosis device
Dear expert team, we are planning to install in our home a reverse osmosis filter device. There are two alternatives offered: 1. Standard device, that uses a 10 liter storage, that is normally filled always automatically and from which the rinsed water can be taken out quickly 2. „Direct ...
Research on animals
Hello Are animals used in the search for a cure for cystic fibrosis? Best regards
Fumes and smoke
Hello, We would like to know if there are precautions, arrangements to be made in relation to fumes and smoke emitted during concerts, shows… for people with cystic fibrosis? Is it better to avoid them? Do they carry risks? You can also find this kind of machine to make smoke in certain stores ...
Discopathy at 14 years, Propionibacterium acnes, growth
Hello, Our 14-year-old teen with cystic fibrosis experienced severe back pain in May-June. He finally performed an MRI in August with this result: On the contrary, there exists in L4-L5 and L5-S1 a disc-shaped bulge with no disco-radicular conflict or a repercussion on the foramens. The bulge ...
Hello, I (female, 39 years old, CF, chronic Pseudomonas) suffered for a longer time from iron deficiency (ferritin below 10) with partly anemia. As the physical symptoms (exhaustion after minimal efforts, fatigue, pain in the neck) got worse and worse, I decided together with my general ...
Hello Our CF son is 7 1/2 years old. I would like to know if he could go to a concert: his sister will celebrate her 10th birthday, and for this occasion we wish to offer a concert visit to our children, but we are concerned that there will be too many people, the weather and the date (January ...
Symptoms in case of CF carriers
Dear experts, My nephew is suffering from CF. I myself have not been tested, if I am a carrier. Two years ago, I had the accidental finding of an IPMN (intraductal papillary mucinous neoplasia) in the pancreas. These had been removed via a Whipple operation. At the control investigation, now ...
Endoscopy of the gut
Hello, Today I had an endoscopy of the gut. This was done, after I had lost uncontrolled greater amounts of stool in short time intervals. I am a 54-year-old CF patient in a relatively good health condition with an FEV1 of 50-65% (this varies according to the season) and I suffer i.a. from ...
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