Topics

Usage of Sinupret®
Dear ladies and gentlemen, the company Bionorica advertises its preparation Sinupret® (here especially Sinupret extract®) that it positively influences the CFTR-channels of the airway mucosa in healthy people suffering from an acute or also chronic rhinossinusitis. Namely in the way that the ...
20.11.2013
Antibiotics in chicken - nutritional recommendation
Dear editors, one reads again and again in the press that chicken (and also turkey) are filled up with antibiotics. As we as CF patients are indeed dependent on antibiotics in a special way, the following question comes to my mind: are CF patients allowed to eat chicken etc. at all, as they ...
18.11.2013
hedge of shrubs
We have just fitted out a house with our 16-month-old son with cystic fibrosis. We want to plant a hedge around the garden. Do we have to avoid some types of plants or shrubs? Thank you
11.11.2013
Chloramphenicol in enzyme compounds
[Please note that this question was originally submitted in Germany; both question and answer therefore refer to the German production context of Creon®.] Hello, We just recently learned that our 2.5-year-old son has cystic fibrosis. He had severe pneumonia in the summer and due to the ...
22.10.2013
Paleness
Dear expert team, My daughter is 8 years old and has CF (F508 del homozygous). Her oxygen saturation and lung function are good, and everything else has also been okay so far. She is very pale, so that after a picture was taken of her recently, she said she looked like a vampire. What can I ...
22.10.2013
Nasal spray
Hello, I would know how many time a nasal spray may be used after the first use. Thanks for your response.
07.10.2013
Bluish toenails
Hello, I have cystic fibrosis, am 35 years old and have an FEV 1 of 85%. However, I always have bluish toenails without other findings; oxygen saturation is alright. What can be the reason for this? Is this critical?
11.09.2013
temperature of pool water
From what temperature on we speak about subtropical swimming pools? What is the maximum temperature ?
12.08.2013
Body fat scale
Dear Sir or Madam, My body fat was determined in the gym by using a body fat scale with handle electrodes (fat < 9%, muscle mass about 43%). This measurement is said to be not very exact. Is is possible that in CF individuals additional measuring errors can occur due to the for sure altered ...
12.08.2013
Barbecue
Hello, I wonder if it is a risk to have a barbecue in the presence of a CF child under age 14 months? Regarding to the smoke. Thank you for your reply.
29.07.2013
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