Topics

Septic tank
Hello, we have a house with a septic tank so I can not put bleach every day in the lines. I want to know what can I use to disinfect instead of the bleach, everyday? Thank you
15.07.2013
Wood granule sealed stove
We have a son who has CF. We plan to buy a wood granule sealed stove. What do you think about this choice? I would like to get a medical advice, thank you.
15.07.2013
Saliva in cystic fibrosis
Hello, For quite some time I am interested to learn why the saliva in CF isn’t more viscous than in healthy persons? Is its composition, amount and viscosity normal compared to the saliva of healthy persons or are there differences? According to Wikipedia the saliva contains the digestive ...
09.07.2013
Chimney
Does the smoke that escapes from the chimney of a wood stove (checked by a chimney sweeper) can do more harm to a CF patient than the usual environmental pollution? Do you have any experiences?
02.07.2013
8 year-old girl with aquagenic keratoderma syndrom (follow up)
I asked about your opinion on my 8 year old daughter with Aquagenic keratoderma syndrome that appeared 6 months ago. Sweat test is 26 (performed 2 months ago). We have just received the results of the genetic blood test, which is negative for the 32 CFTR mutations studied in France today. By cons ...
01.07.2013
hygiene
Should you use single-dose sterile gel for the realization of ultrasound in patients with cystic fibrosis? Some patients require as there would be contamination of vials of ultrasound gel with Burkholderia Cepacia.
24.06.2013
Hypoglycemia
Hello, My son, eleven months old with cystic fibrosis, was hospitalized for three days after hypoglycemia (he woke up one morning in a hypotonic state and he was not able to remain upright, emergency blood glucose was 0.39). The first results are ok, nothing has been detected, we expect more ...
19.06.2013
Medical test ASO
What is ASO?
19.06.2013
Magnesium carbonate in climbing
How dangerous is the "chalk" for the lungs that is used during sport climbing and that is floating in the air in the halls? Can (healthy) parents take their CF-child/-baby with them for some hours daily into the climbing halls without concerns?
12.06.2013
Anato-pathology
Hello, I apologize for this very dark question. If they expressed this wish or agreement during their lifetime (we always say that we can "leave our body to science?"), are dead CF patients sometimes autopsied? Not for the forensic pathology, but for advanced knowledge by examining the lungs, the ...
05.06.2013
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