Topics

Cold weather
My 4 year old with cf is being sent out at lunch and break times in this cold weather when I have asked teachers not to is this right
31.01.2013
Fireplace and CF
Ι have a five year old boy with CF. Up till now we used air-conditioning for heating the house. This year we decided to buy a woodstove. Since nothing works perfectly (e.g. there may be smoke leakage), would you recommend the use of a stove or fireplace (with or without pellets) for people with CF?
22.01.2013
construction of house / fireplace ?
Hello, We are parents of a CF little girl of 10 months and we are building our house. As part of the disease, we wonder if there are precautions to observe that could allow her to live in an environment as healthy as possible, and also make our lives easier in terms of hygiene at home. - A ...
15.01.2013
ions exchange
Hello, my daughter (10 years, suffering from cystic fibrosis) was found during a visit to the emergency (tarchycardia, low grade fever, loss of sight - she saw only black and red, weakness, tremors of the limbs) to have an abnormally low potassium in the blood. Everything was back to normal after ...
14.01.2013
Midges in the kitchen
Hello, We have many midges that we fail to kill. They are in the sink of the kitchen (although we do not let anything hang in the sink). We were advised to use insecticide suitable for this kind of situation, but is it reasonable in relation to the potential toxicity of the product and with a ...
14.01.2013
Vase of flowers
Hello, We were told in our center it was better to avoid plants ... Should we also be afraid of a vase of cut flowers, and therefore containing stagnant water (especially in relation to P. aeruginosa)? Thank you for your site, your answers and your time spent to respond.
10.01.2013
pottery
Good morning, My 4-year-old daughter would like to practice pottery. I wonder if the earth loam is not holder of germs? Should she wear a mask? Thank you in advance
10.01.2013
Vacuum cleaner
Hello Considering the cloud of dust, is it better to have a vacuum cleaner with or without bags? And about the steam cleaner, is it safe and healthy? If I use the steam cleaner in the bathroom, is it efficient to kill bacteria and replace chlorination? Thank you for taking the time to answer all ...
10.01.2013
Causes of hair loss
Dear expert team, Since an exacerbation at the end of March 2012, which was probably caused by ABPA, I (25, female, CF) have to take several additional drugs. Around May 2012 I noticed that I am losing decidedly more hair than earlier. I initially blamed the itraconazole I had started taking, ...
11.12.2012
Donating blood with CF?
Hello, I am 46 years old, have CF and was thinking about giving blood or plasma. I wonder if this is actually good and whether this blood can be used for other people without hesitation? If so, wich is better for me: giving plasma or blood? Many thanks, you are a great team!
11.12.2012
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