Topics

Lupus and CF – Quensyl®?
Dear expert team, I was diagnosed with an autoimmune disease. However, it is not yet clear whether it is MS (multiple sclerosis) or SLE (systemic lupus erythematosus). My symptoms – persistent joint and muscle pain emerging out of the blue – are probably more in line with lupus, which is ...
08.05.2012
Tonsils and adenoids
Dear doctor, Should the tonsils and adenoids be removed in a child with CF? Is there an increased risk of complications or loss of immunity? We would like your opinion on the need to remove or not remove tonsils and adenoids in a child with CF with little nose throat complaints.
08.05.2012
Hair dryer
Is it possible to dry my daughter's hair with a hair dryer ? Could that air be harmful ?
07.05.2012
Link between CF and Sjögren disease?
Is there a link between CF and Sjögren disease?
03.05.2012
Fire place
Is a fire place for wood burning to be avoided in the house of patients with CF. Our son is 2 years old and has a severe form of CF. A worried parent.
03.05.2012
Throat, nose and adenoids
Is it important that a toddler with CF should have his tonsils and adenoids removed? The only complaint is noisy breathing during the day and snoring at night time. I read that the tonsils are important to prevent bacterial infections. Should the tonsils and adenoids in children with CF be removed ...
03.05.2012
Blueish tongue
Should one be worried when one repeatedly has blueish discoloration of the tongue? Is this a sign of shortage of oxygen? Can it occur in young children? Is it part of CF?
03.05.2012
An experiment
In the context of an experiment in school. It’s known that CF patients loose more salt than healthy people. This is due to the defect in the CFTR-protein. I would like to prone my experiment as follows: First I measure the amount of salt in the blood of patients with CF before they have ...
02.05.2012
electronic cigarettes
Hello, I have a question about electronic cigarettes (allowed in public places) : what is the content of the "smoke" that they reject? Is it harmful for us, CF patients (since obviously it can happen to us to be exposed in spite of ourselves)? I read that most were made ​​in China and that ...
22.03.2012
Headache
My daughter is three years old and has CF. I have a question: she frequently says she has a headache or that her legs hurt. I asked our doctor but did not get an answer. Is it possible that she does indeed have a headache and what can be the cause? Many thanks for the answer.
28.02.2012
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