Topics

N1303K mutation
Hello, I have a question. Although I am aware that the course of illness is different for each mutation, I would like to know how the course will be roughly with the N1303K mutation. My daughter is three years old and has not had any lung problems so far, except that she gets exhausted quickly. ...
16.01.2012
ADHD
Do medicines for CF and the drug methylphenidate go together
02.01.2012
MRSA
Can I get an injection into the joint if I had MRSA in the nose until recently but am clean now?
23.12.2011
Coughing at night
I asked a question but forgot to mention that my husband has CF. Since a few months he coughs almost every night as soon as he goes to bed, the coughing can last hours, is very energy consuming and results in not enough sleep. Tiotropium bromide inhalation seemed to work for a while but not ...
01.12.2011
Antibiotics and dentist
I have CF and use cotrimoxazol as maintenance therapy. I needed a tooth extraction. The dentist wanted to give antibiotics but because I already take antibiotics he didn’t find that necessary. Does cotrimoxazol help when you need a tooth extraction? You cannot take two antibiotics at the same ...
01.12.2011
Living in the city ? Or living in the country ? Or in between ?
Are certain air-conditions better than others for patients with CF? Dry air, the sea, the woods, humid air? We live in the center of the city and wonder if this is appropriate. I think that there is more air pollution than in the rest of the city. Can you say anything about where the air is ...
01.12.2011
Operation with general anaesthesia
Dear expert team, due to a mammographically and histologically verified finding, a diagnostic removal of the total focus is planned in general anaesthesia. I am a CF patient at adult age (over 40), take Azithromycin as long-term therapy, in case of acute infections additional antibiotic ...
01.12.2011
baby with difficulty in feeding
My daughter (3 months 1 / 2) has difficulty to breathe since yesterday. She is under cortisone inhalation. My problem is that she cries when I propose her the babybottle and she refuses to drink. Fortunately I do also breastfeeding so she drinks a little. Does the babybottle require too much ...
29.11.2011
chalk
Hello Are there any risks for children with cystic fibrosis to use chalk and clear the blackboard at school? Thank you for your response
24.11.2011
Playing the trumpet with CF
Dear expert team, Our son (8 1/2 years old, CF) is interested in playing the trumpet. Is this beneficial with CF or rather counterproductive, since possibly the pressure is too high fort he CF lung? Thanks for any information!
03.11.2011
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