Topics

cystic fibrosis and hypothyroidism
Hello, Since the time our daughter has been diagnosed with CF (del F508 del F508), problems with thyroid gland has appeared (it has been lasting for more than 5 years). We check the hormone's levels every 2-3 months according our doctor's suggestion and every time the results are not satisfying, ...
10.05.2011
Colchicin
Hello, I read an article (relatively old) that speaks of colchicine, an anti-cancer molecule which could have beneficial effects on CF. Could you please give me some news about this molecule?
05.05.2011
Lower limb pain
My daughter, is13 and has CF. She has a frequent pain that can be intense in the lower limbs. Patella syndrome was diagnosed. Physical therapy was prescribed. No improvement, she consulted a rheumatologist who confirmed the patella syndrome and diagnosed Osgood Schlatter's disease. She is soon to ...
03.05.2011
Wrinkling and painful skin of the hands after shower or bath
Hello, My son has always had very quickly fripent fingers, with strong tingling, pain and even cracks. His skin becomes white and granular and may even goes in powder if he rubs his hands. It's more or less pronounced according to times / periods. It makes me too, like almost everybody. We are not ...
03.05.2011
Indoor plants
Are indoor plants dangerous for my son, who suffers from CF? We are thinking about disposing of them. Could you give us advice, if we should rather dispense with indoor plants in the future? The indoor plants are only in the living-room, so not in the bedrooms. On this topic there are different ...
28.04.2011
Demolition of a house / asbestos
Dear expert team, we have a 7-year-old son with CF. The direct neighbouring house from the 60ties, that is according to the statment of the neighbour himself very much asbestos-containing, should be demolished soon and a new house should be build. I know that the materials are disposed ...
12.04.2011
cystic fibrosis and china painting
I am a 50 year’s old woman who had a late diagnosis of cystic fibrosis. I realize china painting for pleasure. I use as paint thinner lavender oil, orange oil… without any protection and with throat irritation. So I try to use a FPR P1 filtering half mask (called duck mask) which give me a ...
07.04.2011
CA 125 and cystic fibrosis
Hello I wonder if CA 125 is necessarily higher when you have cystic fibrosis, due to the very thick cervical mucus. The rate of my CA 125 is currently 75. Thank you in advance for your reply.
29.03.2011
Pain
Hello, I am suffering from cystic fibrosis (48 years) and for a few days I have had pain in the sacroiliac joint. I take anti inflammatory drugs but pain is soothed only for a while. Can you explain what I can do? Thank you for your reply.
24.03.2011
Frequent cystitis
Dear team, I would like to know, if the salty skin of my partner (CF) could be a reason for the frequent occurence of cystitis. We are only together for 2.5 months, in this time I already had two times cystitis and one fungus in the vagina. As he is prohibited, we have sexual intercourse without ...
21.03.2011
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