Topics

Crumpled hands in case of water contact
I have just followed the question resp. the answer with interest. It strikes me that my daughter (2 years old) also shows very fast crumpeling of the hands when she is taking a bath, I just have read that this phenomenon is found also in carriers, even if it is not so distinct. Our other daughter ...
05.10.2010
Hyaluronic acid
Hello, on the 1st of September it has been in the media, that hyaluronic acid plays an important role in CF. (http://www.idw-online.de/pages/de/news384304). Can this give rise to hope or is it rather uninteresting for the patients? Many thanks for your answer.
05.10.2010
CF and tracheamalacia
Do people with CF have an increased risk of tracheamalacia ? Is the treatment the same ? Is there a link between CF and tracheamalacia ? Is it a disadvantage to have CF and tracheamalacia ?
04.10.2010
Crumpled hands after water contact
Dear expert team, it seems to be that in CF-patients, hands get much faster crumpled in case of water contact then in healthy people (11 min). Keyword: Aquagenic Wrinkling of the Palms. Many children with CF are diagnosed troublesomely after many pneumonias, because a simple, for everybody ...
21.09.2010
Problems in high temperatures
Hello, do CF patients suffer from heat more strongly than "normal" healthy people, and if so, are there any particular recommendations apart from those applicable to everyone (drinking a lot, no sports outside, etc.)? Perhaps increased inhalation or something similar? Many thanks.
14.09.2010
Plastic surgery
Hello, I am 19 years old and I have CF. I am pretty petite and therefore my bust size is very small and I have been suffering from this for years. In general, is there anything to be said against having a breast augmentation done by plastic surgery for a CF individual? Thank you.
14.09.2010
Multiple sclerosis with CF
Dear expert team, I am a female CF patient, 43 years old, and have been in a good general condition lately. After a sensation disturbance in the left side of my body (from hands to feet) the MRT showed old and new centers of inflammation in the brain. Do you know of any patients who have CF ...
07.09.2010
Handicraft class
Dear team, my son would like to take a handicraft class (manual/creative work) as a compulsory optional subject in school. I worry about problems with the clay (and also with the clay cutter in the craft room) as well as with glue, varnishes, and dust. He has repeatedly been battling ...
23.06.2010
Wind instrument
Our 5 year old child would like to learn a wind instrument. Is it good or bad for a CF patient to play a wind instrument with regards to the pressure on the lungs, etc.? And would it be better to use a plastic flute instead of a wooden flute since wood does not dry that quickly with regard to the ...
23.06.2010
Doubts about cystic fibrosis
My son is 5 years old. Since September 2009 he coughs continuously, his stools smell foul. Should I be worried?
21.04.2010
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