Topics

Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
24.03.2014
Stagnant water?
Dear expert team, the grandparents of our daughter (2.5 years old, CF) spend their summer holiday every year at the Lake Constance. This year they would like to invite our daughter to go with them there. They both want to calm our worries concernig swimming lake and Pseudmonas danger with the ...
17.02.2014
Living in the United States of America
Hello, I am 17 and I have Cystic Fibrosis. I wish in the near future to live in the United States of America but I do not know how this great country treats people with Cystic Fibrosis. Are there CF specialized centres? Thank you in advance;-)
10.02.2014
Cruise on a ship
Hello, We are considering a cruise. We ask ourselves if our daughter with cystic fibrosis may participate in this cruise regarding hygiene, water tanks, swimming pool ... Thank you for your reply. Cordially.
20.01.2014
Life in Quebec
Hello, I would like to know how it works when we moved to Quebec regarding doctor, health insurance ... Thank you in advance
23.12.2013
CF and sailing yacht?
Hello, We are thinking about buying a small yacht (sailboat) for our vacations. However, we have a daughter (5 years old) with CF. We are a bit worried about the bacterial load in the water tanks used for showering, washing, etc. Is it sufficient to put chlorine additives or other, similar ...
22.10.2013
Moving to Dubai (UAE)
Hello, Is there a risk for our 3-year-old little boy to go off for living in Dubai? Are respiratory physiotherapists available overthere?
26.09.2013
child with cystic fibrosis and airplane
Hello, I have a 1 year-old child with cystic fibrosis and we want to fly this summer to go to Corsica. Should we take special precautions? For now it was never cluttered and saturation is still 99. Thank you.
13.08.2013
CF contact with chest infected person
I would like to know if a CF carrier with lung infection can safely spend two weeks in a camping tent in a hot climate with a CF child. Some of the lung infection symptoms we know about are persistent cough, short of breath, weight loss, overall weakness and a past history of pneumonia and been ...
12.08.2013
Trip to England
My 16 year old daughter is going to spend two weeks this summer in England in Bournemouth. Is it possible to find a respiratory physiotherapist or will she have to do the physio herself ?
31.07.2013
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