Topics

Lung transplant
I am 21 and suffer from CF. In September 2008 I had a transplant and since the transplant I continuously feel sick to my stomach. I am nauseous, especially after the evening meal. My doctor prescribed Domperidon but I don’t have the feeling that this helps sufficiently. Because I feel nauseous ...
04.01.2010
Obliterative bronchiolitis
I have CF and was lung transplanted 2002. I have been doing fine until this spring. At that time the lung function values started to decline without any obvious reason. After two bronchoscopies in this autumn due to continuous decline of FEV1, my physicians have stated that I probably have ...
04.01.2010
Swine flu vaccination after TX?
Dear Expert team, the swine flu vaccine is supposed to be available from mid-October. Should a CF/TX patient get vaccinated, even though there aren’t any studies about this yet? I am quite concerned since one cannot predict any long-term effects in connection with immunosuppression. What is ...
16.11.2009
Scintigraphy of the kidneys after transplantation
Dear expert team, I have increased kidney parameters since my transplanation 6 months ago. (Urea 44/ Creatinin 1.63) with decreasing tendency. Because of the proposal of my outpatient clinic, I went to a nephrologist. He could not image my kidneys properly by ultrasound and sent me forward to a ...
16.11.2009
Immunosuppression / reddened skin
Dear expert team, my son had a transplant and is taking, among other things, tacrolimus (Prograf®) and mycophenolate mofetil (Cellcept®) for immunosuppression. The skin on his face and hands is turning very red very quickly in sunny weather even if he tries to protect himself (shade and SPF ...
26.10.2009
Cat in the bed
Dear expert team, I noted with delight that I can keep my cat even after my transplantation. However, I was advised not to clean the litter pan myself and not to allow my cat to get into my bed. Unfortunately, I have an open passage way between my living room and my bedroom and do not know how ...
20.10.2009
Renal transplantation
I am a CF patient and need a kidney transplantation. I have a donor who’s been approved. My physician doesn’t want to perform the kidney transplantation because the medication for rejection would destroy my lungs. Now I have learned that there were transplantations performed in Boston ...
19.10.2009
lung transplantation and cats
Dear ladies and gentlemen, Prof. Dr. TOF Wagner wrote on the 31.01.2008 on the topic transplantation and possession of pets "in general are healty pets and especially dogs, which are additionally vaccinated, no special risk, therefore one could say: no concerns..." Now I work myself at a ...
09.07.2009
Blood level of tacrolimus
Dear expert team! After the transplantation my son take as immunosuppressive drugs tacrolimus, cortisone and mycophenolatmofetil (MMF). Is it right that some kinds of food or fruits (grapefruit) influence the blood level? Many thanks in advance.
16.06.2009
Help regarding lung transplant
Hello, I would like to ask about possibilities for CF treatment if one already depends on LTOT (long-term oxygen treatment). My brother-in-law was diagnosed with CF 3 years ago, up till then he had been treated for asthma, which seems very strange to me, because this illness can be easily ...
03.06.2009
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