Topics

Caries
Dear experts, my son (5 years, CF patient) has caries for the first time, at an early stage. In spite of the former detailed talks with the treating dentist about the illness, as well as about the specialties of the dental treatment in CF patients, the lady immediately does not want to take any ...
10.02.2014
hygiene
Hello, I recently started working with patients with cystic fibrosis. I search all the recommendations on hygiene validated by recent studies. There are two recommendations on the website of Roscoff [France], dated in March 2004, including one for patients and one for professionals. Are these ...
03.02.2014
School
hello, My son will be soon in school and I have a lot of questions. Could school refuse or reject the rules of hygiene or refuse to give pancreatic enzymes? My CF center is against the establishment of a Mobility & Living Aid but I am very anxious for meals in the canteen. Can we have a Mobility & ...
27.01.2014
Life in Quebec
Hello, I would like to know how it works when we moved to Quebec regarding doctor, health insurance ... Thank you in advance
23.12.2013
CF Screening
Hello, I’m writing to get some information about CF gene screening. My girlfriend has a family relative with CF and as far as I’m concerned I’m not aware about such a case among my relatives. It doesn’t prevent us from having a chance to have a child with CF if we are both carrier. In ...
17.12.2013
Problems with teeth
My daughter, 2 years old, has extreme problems with her upper teeth. They are very thin, begin to break out. Can this also be related to the disease? Where can I get guidelines for dentists without experience in CF from? We have great fear to visit a doctor, as she already has extreme fear ...
17.12.2013
29 years old CF patient
I am from Romania and I have a 29 years old son with CF, which was diagnosed late... when he was 24 (genetic mutation-milder form= G85E; R347P and sweat test= 110) In childhood he was diagnosed with a syndrome malabsorption. At age 12 he already had sinusitis and nutrition problems, dry cough.. ...
09.12.2013
Appointments at the CF-center: which controls should be done?
Hello! Our child (7 years, CF, underweight) has an appointment at the CF-center every 3 months. Auscultation of the lung is always done and a swab is taken (according to the infection even more often), once a year the blood is controlled. After first infection with Pseudomonas with i.v. therapy ...
18.11.2013
Moving to Dubai (UAE)
Hello, Is there a risk for our 3-year-old little boy to go off for living in Dubai? Are respiratory physiotherapists available overthere?
26.09.2013
Laser dental treatment
Is laser dental treatment (laser drill) more safe concerning the germ risk than conventional therapy with a surgical drill and saline soultion?
13.08.2013
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