Topics

i.v. Pseudomonas eradication therapy - dosage
Dear expert team, I would have a question about the right dosage concering an intravenous Pseudomonas eradication therapy. After an inhalative trial did not bring long-lasting sucess in order to eradicate Pseudomonas completely, an i.v. therapy had been planned with my physician at the last ...
12.05.2017
Drain gutter for walk-in shower
Dear experts, recently our bathroom has been renovated. A walk-in shower has been installed with a drain gutter (similar to those in swimming-pools). The drain gutter is covered. However, the siphon is quite large and water is standing in it. There are no windows in the bathroom. Can the stagnant ...
03.04.2017
Reverse osmosis device
Dear expert team, we are planning to install in our home a reverse osmosis filter device. There are two alternatives offered: 1. Standard device, that uses a 10 liter storage, that is normally filled always automatically and from which the rinsed water can be taken out quickly 2. „Direct ...
17.03.2017
To empty out the dishwasher/ washing machine
Hello, our daughter is nearly one year old. 3 months ago, we got the diagnosis CF deltaF508. At the moment, she likes to help in the household very much. This includes to emtpy out the washing machine and especially to empty out the dishwasher. Is she allowed to help or are there too many germs? ...
06.02.2017
Operation indication for hypertrophic adenoids
Dear expert team, my daughter is 21 months old and suffers from CF. For a few weeks she has an impaired breathing through the nose and because of this especially at night after the bottle cough attacks until she has to vomit. Therefore, she had last week a flexible endoscopy at the ENT ...
06.02.2017
Brushing your teeth
Hello, I'm going to be two years old and I'm starting to be interested in toothbrushes, but as I have CF, I wonder if it's necessary to use mineral water to wet the brush, rinse the mouth and rinse the brush? It makes a lot of mineral water in this case...
20.01.2017
Ferritin
Hello, I (female, 39 years old, CF, chronic Pseudomonas) suffered for a longer time from iron deficiency (ferritin below 10) with partly anemia. As the physical symptoms (exhaustion after minimal efforts, fatigue, pain in the neck) got worse and worse, I decided together with my general ...
16.01.2017
Positve antibodies to Pseudomonas aeruginosa
My son, 14 years old, was diagnosed in August of being positive for antibodies (against Pseudomonas aeruginosa). Sputum has been always negative so far. He was treated with Ciprofloxacin and Colistine. When should we check the antibodies again? I am not sure what to do as I have received very ...
20.01.2017
Pseudomonas in gingival sulci
Hello, in the answer from Dr. Mainz about the sinu-nasal inhalation I read about the possibility of the persistance of Pseudomonas in gingival sulci. I have indeed a bad dental status and also some dental crowns made of synthetic material. Now I would like to adress this topic urgently, in order ...
16.12.2016
Under which circumstances is Pseudomonas turning to be mucoid?
Hello, my daughter, CF, 8 years old, has had in February 2015 for the first time Pseudomonas aeruginosa. Two cycles of tobramycin per inhalation followed, in the third cycle in combination with ciprofloxacin, after 3-6months PA could be again and again found. Then three i.v. therapies followed ...
05.12.2016
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