Topics

To rinse germs from the water pipes + transmission of Pseudomonas
Dear expert team, I have 2 questions: - about "letting the water run" in the mornings: in our house, the water literally shoots out of the pipes...in case of letting it run for 5 minutes, this would be an immense consumption of water and I would like to know if it is necessary in this case...is ...
21.07.2014
School trip to bathing lake
Hello, The class teacher of my daughter (CF) is planning a class trip to a holiday camp and the area is just near a bathing lake. I know, that my daugher is not allowed to bath in the lake due to the danger of Pseudomonas. However, is there also a risk of infection if she is only on the ...
21.07.2014
Is swimming allowed?
Hello I am a 27-year-old mother. My 7-year-old son was diagnosed at birth for cystic fibrosis. I would have a question about the swimming pool. The doctor of the CF center strictly forbids him the bathings. You see how they are at this age: I can't refuse it to him. Measures of hygiene at the end ...
14.07.2014
Cayston®
I’ve heard (by a service provider) about a new molecule named “Cayston®” that is used to treat CF adultes againt Pseudomonas aeruginosa. This molecule would be used with a new machine that will arrive on the market (or already has?). This person could not tell me more. I turn to you in order ...
14.07.2014
CF and cortisone
Dear expert team, as a CF patient with severe allergic asthma (trees, grasses, fungus spores) I face the problem to be forced to reduce the cortinsone (prednisone 10 mg daily / symbicort 200® (budesonide and formoterol) 3puffs 3 times daily) that I take for 10 years, due to recurrent ...
08.07.2014
Chronical carrier for Pseudomonas aeruginosa
Hello, My 11-year-old daughter is affected by CF. After a culture of a sputum control, 2 different strains of Pseudomonas aeruginosa (P.a.) were found (P.a. has been found in an irregular way since she is 18 months old). The doctor informed me that he didn't want her to have an intravenous ...
09.07.2014
Visit of a farm
Hello, my son has a one-day outing in a farm with his college. His professor of biology informed me that the chlidren will spend all the day inside the farm, in the middle of the various animals, with a picnic next to them, cow milking etc. Thus my son would remain locked and not be outdoors, but ...
24.06.2014
Risk concerning a person with chronic bronchitis
Hello, I want to know what is the risk to encounter a person with chronic bronchitis and who is under oxygen in the hall of the building every day. Is there a risk of transmission of germs?
24.06.2014
Playdough
Hello, Can a CF child of 20 months use playdough if he respects conventional hygiene instructions? Is there a particular indication against? Thank you in advance.
24.06.2014
Narrowing with colistin inhalation
Dear expert team, as a female CF patient and an asthma patient with colonization of two strains of Pseudomonas (mucoid), I inhale every second month Cayston® (aztreonam), as I only hardly tolerate the other antibiotics for inhalation. In the interval-free month I got due to a cold ciprofloxacin ...
24.06.2014
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