Topics

Pseudomonas aeruginosa
Hello, My 3 old-year daughter is colonized with Pseudomonas aeruginosa for 1 year. She is treated by intravenous antibiotics (ceftazidime + tobramycine) every 3 months. May the Pseudomonas aeruginosa become resistant to this treatment ? If yes, how long is it to be resistant? In case of ...
08.04.2014
hot tubs, jacuzzi, spa baths
We need to explain to friends why our grandsons (11 and 14) are not allowed to go into hot tubs, jacuzzis, spa baths etc. Please could you recommend research documents (if any) or any written material to help us put this danger to our grandsons over clearly to anyone who may have care for ...
24.03.2014
Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
24.03.2014
Pseudomonas aeruginosa
Is there a mean age of primo-colonization with Pseudomonas aeruginosa for CF patients? After primo-colonization, is it possible to eradicate Pseudomonas for a long period of time or should patients expect chronic Pseudomonas infection immediately after primo-colonization? Thank you.
24.03.2014
CF mutations
I am a mother to a girl with F508del/CFTRdele2,3 (21kb) mutations. She was diagnosed at 2 months old. Now she is 5 and doing very well. Only 2 lung infections, no P.a cultured. Still I am concerned as I read both of the mutations are clasified as "severe". Does it mean that the progress of the ...
24.03.2014
Duct heating system?
Does anyone know if this type of heating system is a threat to those with C.F.?
24.03.2014
hot tubs, jacuzzi, spa baths
Could I get recent publications/research on the use of hot tubs etc for cf teenagers please?
24.03.2014
Pseudomonas
Is Pseudomonas (lung) curable?
03.03.2014
FEV1
Hello, I am a 46-year-old CF woman and my FEV1 has decreased after a pneumonia, that has been treated for 4 weeks with an i.v. cure because of Pseudomonas, about half of the value from 52% to 28% and I still need oxygen, two months after discharge from the hospital, in spite of the fact the ...
17.02.2014
Stagnant water?
Dear expert team, the grandparents of our daughter (2.5 years old, CF) spend their summer holiday every year at the Lake Constance. This year they would like to invite our daughter to go with them there. They both want to calm our worries concernig swimming lake and Pseudmonas danger with the ...
17.02.2014
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