Topics

liquid soap
Hello, Our CF center recommends the use of liquid soap for washing hands of the family and physiotherapists at home for our daughter. When charging distributors, there is always a non-used product stagnating at the bottom. Could the properties of the soap be altered? Could the risk of ...
11.11.2013
pseudomonas treatment
Dear ECORN Experts, I have a 5 years daughter. Here where I live we do not have a cf specialist so we go to another country for controls. She was diagnosed with cf at 1 one month. Her sputum test came back positive for PA (Pseudomonas aeruginosa) for the first time on January this year. We ...
26.11.2013
CF and sailing yacht?
Hello, We are thinking about buying a small yacht (sailboat) for our vacations. However, we have a daughter (5 years old) with CF. We are a bit worried about the bacterial load in the water tanks used for showering, washing, etc. Is it sufficient to put chlorine additives or other, similar ...
22.10.2013
Bleach
Does bleach (household) kill bacteria, etc., on contact, or must the surface remain wet for a certain amount of time? Thanks.
21.10.2013
synchronized swimming
My 9 year-old CF daughter practices synchronized swimming for the first year. After discussion with the CF centre, the doctor told me that there were no problems if precautions for public pools were respected. However, I wonder if other children or people practice the sport and know their ...
21.10.2013
Positive effect of thermal water
Dear expert team, We live close to a thermal bath that advertises, among other things, the mucolytic and curative effects of its thermal water as well as a brine floating pool and brine inhalation. Could regular visits be beneficial to our daughter (2 years old, CF)? Or would the warm, humid ...
21.10.2013
Drying clothes
Hello. How long takes the pyo to develop in clothes? My question is, on the one hand, related to the drying of laundry out of the washing machine and, the other in connection with the use of towels and hand towels. What about if you forget the clothes clean but still wet in the dryer? Is there a ...
21.10.2013
fruits and vegetables
Hello, how well do I have to clean the fruits and vegetables to avoid contact with germs at risk? Is it possible to wash them with chlorinated water and in which concentration? We will soon start food diversification of our baby with cystic fibrosis and we would like to prepare his meals, but ...
21.10.2013
Inhalation in case of resistant Pseudmonas
My son is 33 years old, mutation genotype deltaF508 and R553x. He has inhaled colistin for decades and now his Pseudomonas germs are resistant. Furthermore I ask myself if it is not possible however, that in case of such a long exposure colistin passes minmally the blood-brain barrier as he ...
21.10.2013
Nasal spray
Hello, I had asked a question to you about the nasal spray sometimes ago, but my question was not good. I wanted to know how long the spray can be open before there is a risk of finding Pseudomonas aeruginosa in the spray. You said “2 months”. Do you think that the spray could not be used after ...
15.10.2013
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