Topics

Aquadoodle game and pseudomonas aeruginosa
Hello, My daughter is 15 months old and suffers from CF. At home, we have an “aquadoodle game”, you must put water in a pen and write on a surface that will stain on contact with water and then will dry. I have put aside the game through fear of Pseudomonas aeruginosa, but I find more and more ...
24.06.2013
hygiene
Should you use single-dose sterile gel for the realization of ultrasound in patients with cystic fibrosis? Some patients require as there would be contamination of vials of ultrasound gel with Burkholderia Cepacia.
24.06.2013
vinegar
Hello. Does the vinegar destroy Pseudomonas aeruginosa? Best regards
24.06.2013
cystic fibrosis and meeting with dolphins
A big thank you to Dr. Ravilly for her response on the opportunity to swim with dolphins. We retain a possible offer for swimming in the sea or ocean but not in the dolphinarium (risk of transmission in two directions). Last question: what about the meeting at the edge of the dolphinarium pool ...
19.06.2013
swimming pond
Dear reader, We have a 14 year old teenager with CF (mutation DF508 and N1303K) We are thinking about having a swimming pond in our garden. Would you advise us not having a swimming pond or is there no problem at all and can we put through our plans? Yours sincerely,
18.06.2013
CF children
What has to be considered in a family with two CF children? How can we live a normal life and protect our children of the exchange of bacteria?
12.06.2013
pseudonomas aeruginosa
On which fruits and vegetables can Pseudomonas be found?
05.06.2013
G542X /5t and PA
My 7 year old son was diagnosed with carrying g542x and 5t. This diagnosis was made when he was 6 years old after experiencing syringeal akrokeratoderma in his hands (exessive wrinkling of the palms). He has a sweat test of 39 and then 40. The wrinkling of the hands only lasted for about 3 ...
29.05.2013
turf
Hello, I read in one of your answers that children with cystic fibrosis could enjoy green spaces, but can you leave a baby with cystic fibrosis crawling in the grass? Or be sitting in the grass (he touches the grass and put his hands in the mouth)? ... The erath may also be a tank of Pseudomonas ...
29.05.2013
CF and swiming pool
Are swimming pools safe for children with CF? What do we need to know?
29.05.2013
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