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cystic fibrosis - problems with medical care
Hello, We have a 5-year-old daughter suffering from CF. Our child is in the care of only one doctor, who is taking care of all CF patients in our province. In the past two weeks we tried to contact our doctor, but unfortunately her mobile phone is switched off. Our daughter underwent antibiotic ...
20.01.2009
Pseudomonas
Dear Expert team! If a drop of water contains Pseudomonas aeruginosa, is it possible that the bacterium survives if the drop dries out?
05.01.2009
Transmission of Pseudomonas aeruginosa
Hi! I have several questions with regard to the transmission of Pseudomonas aeruginosa. It is recommended that there shoud'nt be any plants in the room of the CF child. How large should be the distance between a window in the child's room and a source of P. aeruginosa (e.g., flower pot, or ...
05.05.2009
Bugs !!
My 16 yr old son has CF. He has been growing Mycobacterium Abscessus for a couple of years and is on intensive eradication therapy (Amikacin nebs, Clarithromycin) He recently also grew Scedosporius - and has now cultured Pseudomonas (again) so is on eradication therapy (Colomycin Neb & Cipro ...
26.01.2009
How to proceed?
Hello, Would like to give you a short account of our situation: Three years ago our daughter (6, CF) was for the first time diagnosed with Pseudomonas a. This germ was treated with an IV for 14 days and a three months´ inhalation with TOBI. After that the Pseudomonas was no longer detectable ...
12.01.2009
Green house
Dear expert team, Should an individual with CF avoid green houses such as botanic gardens? What about the bacterial conditions? Greetings and Thanks!
24.11.2008
Pseudomonas: Is there any danger in the lawn?
Our son, 8, wants to play football/soccer in a club. He is active in sports, a member of a gymnastics club and karate. Our question: Is it dangerous to play outside when it is raining and the lawn is wet or when the lawn ist still wet because it rained the day before and the drops fall on him? ...
22.12.2008
Pseudomonas
Hi, I am 25 years old and have very severe asthma which is but difficult to be hold at bay with all drugs available (Symbicort, Singulair, Decortin 7,5mg, Sultanol forte for Pari boy...) I permanently have infections and I had three bouts of pneumonia within a bit more of one year. Now an ...
22.12.2008
CF patient
CF patient, 19 years old, diagnosed with CF as a baby and has staphyloccus aureus. Diagnosed with pseudomonas a few months ago. My question is: should the patient take tobramicina, as when he was last tested for bacteria and had sputum taken, he did not have pseudomonas any more. Can pseudomonas ...
20.11.2008
Sailing and cystic fibrosis
Which experiences exist concerning the hygiene of water reservoirs on boats during sailing trips and is there a potential Pseudomonas problem? If so, what precautions can be taken? Should my daughter participate or not?
04.12.2008
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