Topics

Soap bubbles 2
Hello, The question was more if Pseudomonas can proliferate in the container filled with soap solution itself, for example in a "Pustefix" container. Best regards
21.04.2008
Kindergarten with CF/Pseudomonas
Hello, I have registered my daughter with CF for kindergarten. Now, the kindergarten possibly does not want to admit her because they cannot supervise the enzyme substitution and guarantee to avoide problematic germs (Pseudomonas). This is not only regarding the toilet but also the usage of ...
23.04.2008
Soap bubbles/ Soap bubbles 2
Hello, I would like to know if Pseudomonas germs can proliferate in soap bubbles and if our child can be infected that way. Many thanks for your reply. (Soap bubbles 2) Hello, The question was more if Pseudomonas can proliferate in the container filled with soap solution itself, for ...
08.07.2008
Day light bath
Hello, I understand, that the recommendation to open the water taps for 1-2 min in the morning, to flush the toilet and to open the window shortly, is linked to a day light bath. What should I do, if a do not have a day light bath? Just to turn on the air conditioning or is this not effective? ...
21.03.2008
Training
My son (19 years old) suffers from CF since birth, including cirrhosis of the liver, pancreatic insufficiency, since 2002 diabetes - still on tablets - colonization with Pseudomonas, since 2006 colonization with Burkholderia cepacia - 2-3 times a year i.v. therapy. In September 2006 he started a ...
21.03.2008
Aerugen
Is the vaccine „Aerugen“ still available in Switzerland?
23.04.2008
Fountain water
Hello, We are planning a vacation abroad. The travel organizer informed us that all pools are filled with fountain water that is exchanged every two to three days. The tap water is also fed by this fountain. Can a stay for a CF patient be recommended? Best regards A second question has been ...
09.04.2008
Rainwater collector
I am father of a 9-months-old daughter with CF. We are building a house at the moment and plan to install a rainwater collector for the new house which should provide the toilet flush with water. Is rainwater problematic concerning the colonization with Pseudomonas? Is it more advisable to use ...
17.01.2008
Genotype F508/R553x, Gentamycin Inhalation
Hello, My 30-year old son has the genetic constellation delF508 and R553X. He inhales since approx. 20 years Colistin, after his Pseudomonas showed resistance against Gentamycin. Could he, nevertheless, inhale with Gentamycin? According to Professor Kerem, the substance PTC 124 is also ...
21.01.2008
Water supply
Hello, we would like to use our well for water supply. Is this water suitable for a CF individual? After a normal investigation in Sweden, we were told that it has drinking water quality. Thanks
28.01.2008
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