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Continued fever with CF
Dear expert team, our 14-year-old son has been running a fever of more than 39 degrees since April. He has P. aeruginosa, mycobacterium abscessus and ABPA. He has a port that was already contaminated with staph epidermids and changed in 2010. Currently, he is taking Tobi® (tobramyin), ...
02.08.2012
Vessel problems with i.v. therapy
Dear experts, I am 31 years old and currently in the second CF stage, and before all else, let me say that a port is not yet an option for me. I have already had several i.v. therapies, although the last three have not been completely without problems. The therapies as such were successful, but ...
30.07.2012
drug for pseudomonas
Good evening. I have pseudomonas in my lungs since many years ago. I follow a treatment with tobi® and tadim® (colistimethate sodium powder) interchangeably. Is there a medication that is cheaper than tobi?
11.06.2012
Staphylococcus aureus
I am 29 years old; I am coumpound heterozygous for deltaF508 and R347P mutations. I was chronically infected by Staphylococcus aureus and took Minocycline since 2006, because of frequent exacerbations and recurrent use of intravenous antibiotic courses. With this treatment I feel very well. ...
11.06.2012
Infection
What does infection with mycoplasma do to a patient with CF and is this easy to treat?
08.05.2012
Renal gravel
Dear expert team, my 7-year-old son has CF (F508 homozygous), his current FEV1 is at 88.4% and he is being treated with antibiotics continuously (cephalexin 1000mg and ciprofloxacin 250mg – 3 weeks on/3 weeks off, as well as colistin). We do an i.v. therapy at home once every year, the last ...
08.05.2012
Klebsiella bacteria in the throat
My daughter (14 months, CF) had a throat swab done in which klebsiella bacteria were found. The doctors said these bacteria were sensitive to cefuroxime and that I should give my daughter this antibiotic. However, she has already been taking it for three months anyway in order to get through the ...
07.05.2012
Antibiotics
Can antibiotics that are administered in form of an infusion be replaced by intravenously injected shots?
02.05.2012
How to react to an inexplicable decline in lung function?
Dear expert team, I am 24 years old and have CF. As a basic therapy, I have been inhaling colistin, salbutamol, Atrovent® (ipratropium bromide), saline solution 5.85% and Viani mite® (fluticasone/salmeterol) long-term. In addition, I take azithomycin orally, 3x500mg per week. My diabetes is ...
24.04.2012
TOBI® (tobramycin) inhalation continuously
Hello, I have question regarding the inhalation of TOBI® (tobramycin). I am 31 years old and have CF. Bacteria are Staphylococcus aureus and sometimes Pseudomonas. Since 3 years I am inhaling tobramycin using the following dosage regimen: 28 days twice a day 300mg, 28 days without tobramycin. ...
17.04.2012
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