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Carpet and picking mushrooms in the forest
Hello I’d like to know what is better in a room for a child with cystic fibrosis: carpet or linoleum like plastic soil? And I'd would like to know if it's dangerous to pick mushrooms in the forest with the Pseudomonas or other bacteria present in the ground and moisture? Thank you
03.12.2014
contamination by pseudomonas aeruginosa and other bacteria
My child has cystic fibrosis. Therefore we are aware of the rules of hygiene to reduce the risk of contamination by Pseudomonas aeruginosa and other bacteria. Despite the literature on this subject, I have some questions: 1 / can the pyo grow in wet hair? (I have long, thick hair and after ...
25.11.2014
Pseudomonas and Aspergillosis
My 19 years old daughter has been recently treated with IV antibiotics for the first time for Pseudomonas primo-infection. At the end of the antibiotic treatment, she was diagnosed with aspergillosis (presumably ABPA) with high IgE levels (1500). After intitiating treatment with oral steroids, IgE ...
25.11.2014
Pseudomonas aeruginosa with excessive mucus formation
Dear expert team, due to an infection with a strongly mucus-forming pseudomonas, the last two times I was in hospital for 5 weeks for an i.v. therapy with two antibiotics (Fortam®/ceftazidime & Amikin®/amikacin; colistin & Ciproxin®/ciprofloxacin). Both times, after 10 days, a resistance and ...
25.11.2014
Swimming pool
I have a question about the warmth of pool water. I'm not allowed to go to Center Parks because the water is too hot. In Knokke-Heist a new swimming pool has opened. The water in the pool is 30° C. Is it healthy to swim in the pool or should I stay out of it?
04.11.2014
Burden with germs
Dear ECORN team, I would have a rather uncommon question. I am writing a seminar paper on the topic "problematic germs in case of CF" and would like to write something about the occurrence on a percentage basis of three different germs. It deals with the following germs: Pseudomonas ...
20.10.2014
4MRGN and regular i.v. therapie
Hello, for about one and a half years besides a "normal" Pseudomonas aeruginosa also a 4MRGN is detected in my sputum. According to the lab, it is though still sensible to 1 or 2 antbiotics. My question is now, if regular i.v. therapies (like they are desired by the treating physician) make sense ...
20.10.2014
Grommets (tympanic tubes) yes or no?
Hello, Our 4-year-old daughter suffers from CF! She has an impairment of hearing caused by mucus behind the ear (probably due to a precedent otitis media)! At first, we were told to wait and have a control after 3 months, if the finding will not improve: grommets…. Now we have 2 opinions, ...
06.10.2014
Pseudomonas
Dear expert team, our 1-year-old daughter has recently Pseudomonas in her routine throat swab. Therefore she receives an antibiotic treatment. Is a colonization with Pseudomonas at the age of 1 year unuasually early? Do we have to adapt ourselves to a severe course of the lung disease, ...
29.09.2014
Stagnant water
Hello, What do you really mean by stagnant water? What should we really be aware of? Thank you
08.09.2014
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