Milk and milk derivatives
Hello, for a child with high sputum production, is it better to avoid or to forbid cow's milk and its derivatives (cheese - yogurt). I've heard that it promotes the production of mucus. Thank you for your reply
Cystic Fibrosis
Hello, after a pancreatitis, my 10- year-old son has been diagnosed with cystic fibrosis. He never had bronchitis. Sweat tests values are 55 and 50. The N1303K mutation was identified. His lungs, will they necessarily be damaged? Can people live with pancreatic insufficiency? Thank you very much ...
Well-being and food
Hello, I'm currently a dietetics student ("BTS") and I have to accomplish a personal study. Awared by TV spots and by a first research during my senior year, I have chosen Cystic Fibrosis for my subject of study. I would like to know if food has an impact on the well-being of CF people? Thank ...
Antibiotics in chicken - nutritional recommendation
Dear editors, one reads again and again in the press that chicken (and also turkey) are filled up with antibiotics. As we as CF patients are indeed dependent on antibiotics in a special way, the following question comes to my mind: are CF patients allowed to eat chicken etc. at all, as they ...
Chloramphenicol in enzyme compounds
[Please note that this question was originally submitted in Germany; both question and answer therefore refer to the German production context of Creon®.] Hello, We just recently learned that our 2.5-year-old son has cystic fibrosis. He had severe pneumonia in the summer and due to the ...
Dear expert team, My daughter is 8 years old and has CF (F508 del homozygous). Her oxygen saturation and lung function are good, and everything else has also been okay so far. She is very pale, so that after a picture was taken of her recently, she said she looked like a vampire. What can I ...
fruits and vegetables
Hello, how well do I have to clean the fruits and vegetables to avoid contact with germs at risk? Is it possible to wash them with chlorinated water and in which concentration? We will soon start food diversification of our baby with cystic fibrosis and we would like to prepare his meals, but ...
Salads in bag
Hello We ask a question about salads in bags in which there is always a little stagnant humidity especially in a plant environment. Do you think it is possible that the Pseudomonas aeruginosa proliferates there and we have to, by precautionary measure, favor whole salads to prepare? Thank you  ...
protein breakdown
Hello, My 17-month-old daughter has CF. She is fine. No airway problems and she grows well. She has a weight above average (11 kg). She eats well. 4 times a day she gets 4 spoons of pancreatic enzymes (20 000 units each time). Sometimes I smell a rotting odor in her regurgitations. I did ...
Taking antibiotics
Hello, I am the father of a child who has cystic fibrosis. I've read that taking vitamins should be rather after swallowing pancreatic enzymes. What about antibiotics? Is it better, is it more effective if taken after swallowing the CREON? Thank you very much.
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