Topics

No kreon despite cystic fibrosis
Dear Sir or Madam, I (female, 24 years old, CF) have not taken kreon for about two years. I am 160cm tall and my weight is 53kg (stable) and I do not have abdominal pain at all and bowel movement is well. My doctor is not happy about it [that she is not taking kreon] but I do not see the ...
17.04.2012
Orthomol®
Hello, Friends recommended me "Orthomol immun®" for strenghtening the immune system. Is this product an alternative to vitamin products? Or can it be taken in addition to these? I know that it is pretty expensive but if it helps…
22.03.2012
gastrojejunostomy
Hello, my 5 month old daughter has a naso duodenal tube since mid December (at first naso gastric), because she had a low growth, while taking weight, now the doctors discuss about gastrojejunostomy while her weight for height ratio is good, 5.200kg for 58 cm, I would like to know what are the ...
22.03.2012
Kreon and pancreatic sufficiency
Our child is a heterozygot for deltaF508 and R1070W, with minimum clinical manifestation so far (pancreatic sufficiency, no pulmonary complications, just episodes of severe dehydration). At 3 years of age he weighs 15 kg and is 102 cm tall, he has solid, normal stools. He never recieved Kreon or ...
22.03.2012
Class II & III muations
I am fairly new to learning about CF but have accepted the baby has this and the mutations are Class II & III. The little one is now 6 months and 2 wks old and so far the health has been excellent, not even a slight cold. The weight gain on average is about 0.64grms per week and his CF clinic are ...
22.03.2012
oesophageal pain (2)
Hello, I would like to thank you at first for your answer to my question “Acute oesophageal pain”. Following this pain, endoscopy was recently performed for my 14-year old CF daughter by the Professor of CRCM. This endoscopy has diagnosed an opened cardia, an oesophageal reflux, responsible ...
28.02.2012
distal intestinal obstruction
My mother has had a diarrhea and subsequently a sub occlusion. She is now very tired. Is it a frequent event ?
27.02.2012
ADEK and vitamins for pancreatic sufficient patients
Pancreatic sufficient patients with CF should take ADEK and vitamins suppliments? My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). Thank you.
27.02.2012
Steatorrhoea and elastase
Hello, My little 3 year old daughter has a high steatorrhoea but a normal faecal elastase. How can we explain this? I thought that one without the other is impossible. She is treated with Creon and I was told that she has a pancreatic insufficiency but I thought that in this case faecal ...
14.02.2012
Progress of CF, stomachache & physiotherapy
I follow all the instructions, but I do not know if the physiotherapy I do to my child is enough or correct. What are the symptoms before the health of my child is severely affected? Is it true that stomachaches is a major symptom? It does not happen often and I am not sure if it truly happens, or ...
20.01.2012
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