Topics

Decontamination of the bowel in case of antibiotic therapy
Dear expert team, how can the intestinal flora be maintained in spite of an antibiotic therapy? Is this possible at all? If yes, which substances come into consideration? I have to take Ciprofloxacin capsules in alternation with Tobramycin-inhalations for one year. Many thanks in advance! Your ...
04.10.2010
CF and birth
Dear ladies and gentlemen, Currently, I am very desperate. I am pregnant in the 23+4 week and 2 weeks ago I have been told, that my unborn child is likely suffering from this disease, as at the prenatal diagnostics, which I have done according to the recommendation of my gynecologist, one has ...
04.10.2010
Lactose intolerance 2
Dear Dr. Posselt, I thank you very much for your extended answer. Now I can probably better understand why my test results have been negative. Of course I have to take many drugs against an organ-rejection. Also the intake of antibiotics, especially Ciprofloxacin, is frequent, in case an ...
21.09.2010
Lactose-Intolerance
Dear expert team, I suffer from CF, am 32 years old and have had a transplant of the lungs and liver nearly 3 years ago. I am doing very fine and I can follow my former full-time job again for 2 years now. However, I have an unpleasant problem. Since my transplant surgery I do not tolerate milk ...
21.09.2010
New medications
What is your opinion about pancreaze and aquadeks? Are they available in Greece and have they been used in chlidren? Are they covered by social security? Are they any better?
13.09.2010
Creon necessary?
Hello, our daughter (18 months) has the F508 mutation (homozygous). I am giving her Creon for children, but am playing it by ear. Usually, the exact Creon dosage is calculated precisely for each fatty meal, but that is not necessary for her since she is getting by with very little Creon. When I ...
13.09.2010
Croup?
Hello, my 6-year-old son has been having coughs (infections) since age 1 and has to throw up mucus. The doctors said that he has croup. It is getting worse each year. Last year he had a budding pneumonia and empty-stomach vomiting, abdominal pain, and strange stool (brown-white-yellowish with ...
07.09.2010
Artificial pancreas
I just read in [an online news magazine] that the development of an artificial pancreas is making progress. Will this artificial gland possibly be an option for CF patients in the future? And how do I have to imagine this – can this only affect the insulin/glucagons balance and hence treat ...
07.09.2010
Nausea and vomiting in severly ill people
Despite 24-hour oxygen administration, my son suffers from nausea and vomiting in connection with food intake. This often seems to be the case in the late stages of CF. Is there a connection with the lung/heart problem (tachycardia) or a medicinal therapy? It would be important for him to gain ...
06.09.2010
Food
Dear expert team, I have read all questions in this forum and, interestingly, have come across the question about chees. Up to now, I have not given Louis any blue cheese for fear of possible fungi. This has been clarified now. ;-) Are there any other foods which one does not think of at this ...
06.09.2010
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