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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Intestinal problems with CF
- What are options and experiences regarding examination and diagnostics in case of repeated abdominal colics and assumed constipation, intestinal stenosis up to the point of quasi-obstruction of the bowels in individuals with CF? […] Wouldn’t it make sense for adult CF patients to have a ...
- 23.06.2010
- Nutrition via port
- Dear expert team, I am 21 years old and weigh about 38 kilogramms. Not enough! For this reason my physician wants me to agree on a PEG (percutaneous endoscopic gatrostomy). However this is not in my interest. Since September 2009 I have a port, as I need an iv-therapy more and more often; I am ...
- 21.04.2010
- Blood in stool
- Dear expert team, Since three days my son has blood in the stool. He stopped taking ACC® (Acetylcystein) and almost does not eat anything in order to relieve the bowel. Do you think this is necessary? Many thanks for your efforts.
- 16.04.2010
- Anaemia
- My son was diagnosed severe CF form from birth. A few times he was at ICU for ventilation. Now he is 1 year old, very active, his weight is 8,650 kg, but was some suspicion that he has anemia. We used some iron preparations (feroglobine) as well as apple or beetroot juice. How to treat anemia ...
- 15.04.2010
- recessive CF carrier and pancreatic problems
- I am a possibly carrier of the CF-gene, the disease being present in my family. I know that mild forms of the disease may be present in CF-carriers, for example resulting in infertility (a disease also prevalent in my family). My question is the following: “Is it possible, being a carrier, not to ...
- 23.03.2010
- vitamins
- It is mandatory measurement of fat-soluble vitamins in patients with cystic fibrosis?
- 22.03.2010
- Pancreas 2
- Dear Dr. d'Alquen, my daughter has the mutation R1048G and R1162G; in our CF center, as well as in your forum we have been told, that that kind of mutation probably speaks for a mild course, whereby one has never a guarantee. In the last winter my daughter had finally 7 infections of the ...
- 17.01.2010
- Pancreas
- My daughter’s CF was clearly diagnosed by genetic testing, however her case seems to be a borderline case. Should I point out these new circumstances when we go to the next regular check-up in the CF center? In the meantime, her appetite is better again and she complains less frequently about ...
- 14.01.2010
- of fat-soluble vitamins
- We are from Bulgaria. Much like we and our language should be added to your list. My question is: Imer levels of fat soluble vitamins it is free for patients with CF? I ask because even here in Bulgaria we have a laboratory to carry out this operation.
- 05.01.2010
- Lung transplant
- I am 21 and suffer from CF. In September 2008 I had a transplant and since the transplant I continuously feel sick to my stomach. I am nauseous, especially after the evening meal. My doctor prescribed Domperidon but I don’t have the feeling that this helps sufficiently. Because I feel nauseous ...
- 04.01.2010