Topics

CF
Can you also have a mild form of CF? I mean that you are not sick even if you have a low lung capacity.
06.05.2013
Aquagenic keratoderma in a 8 year-old girl
Hello, My 8 year-old daughter has, since December 2012, an Aquagenic keratoderma (she is unable to keep her hands in the water, after a few minutes a painful unbearbale swelling occurs). The dermatologist in the hospital confirmed this, prescribed a sweat test (the result was 26) and now ...
03.05.2013
CF children
Hello How can two CF children meet, aged respectively 9 months and 3 years? And what are the precautions? Thanks
10.04.2013
Bronchitis and other
Hello, I am the mother of a little CF girl and want to know if she has to avoid contact with persons having bronchitis or cold or gastroenteritis or may they have a mask in their presence? Thank you
26.03.2013
Avoid sick people
Hello, Our 7 months old son has Cystic Fibrosis and in times of epidemic influenza, colds and gastro-enteritis, we were advised to avoid our son contact with sick people. To what extent should we consider this advice? Should we refuse to invite people with colds? Should we invite them but they put ...
26.03.2013
Life expectancy
What is the life expectancy of a girl born in 1994?
05.03.2013
Moisture and sea
Hello, We live in Casablanca with our 4 year old daughter who has cystic fibrosis. It is a city polluted by its industries, its untreated waste and a growing and unregulated car fleet. The climate is temperate with an average of 21 degrees (10 in winter nights and 28 in summer days). The moisture ...
28.02.2013
carriers
Is there anything known about CF carriers? Do they generally have more “CF like complaints”? Or is it a coincidence that CF carriers in our family have more intestinal and pulmonary complaints? Has research on this topic already been done (f.e. abroad)?
05.03.2013
Explain the disease to older siblings
Hello, we are the parents of three children aged 7, 5 and 2 years. The younger has Cystic Fibrosis. We have not explained to the older the illness of their sister. They begin to ask questions. They know she is sick, she should gain weight and eat more than them. But we do not know when to explain ...
26.02.2013
stroll
Hello, My son is 7 months old and has cystic fibrosis. I love going for walks. But I wonder if there is weather to avoid: Rain, fog? Or a good walk is always good to take? Thank you very much!
18.02.2013
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