Topics

Symptoms in case of CF carriers
Dear experts, My nephew is suffering from CF. I myself have not been tested, if I am a carrier. Two years ago, I had the accidental finding of an IPMN (intraductal papillary mucinous neoplasia) in the pancreas. These had been removed via a Whipple operation. At the control investigation, now ...
05.08.2016
Sleep and stomach pains
Hello Our son is 8-months-old. He was diagnosed at birth (deltaF508) and presents especially digestive symptoms improved by Creon (approximately 9000 before cq meal). We are very bothered because he never had a complete night since his birth. He falls asleep alone in his bed but has at least ...
04.06.2016
Fever in a 11-months-old child
Dear expert team, My daughter is 11 months old and has been diagnosed a few weeks ago. Now she has slight fever (37,8°C)…when shall I present her at the CF center? What should I do now? Many thanks! S.S.
13.05.2016
Living at the seaside
Hello, Is living at the seaside providing any benefits or otherwise a risk of aggravation for a CF patient? Thank you
11.05.2016
Pulmonal damage
Hello, In case a child with CF can nearly never expectorate sputum after inhalation of 6% hypertonic saline, and also otherwise there are no problems with cough or the airways, can one then assume, that the lung is not as strongly involved by the CF? Is it true that there are in general two ...
06.05.2016
Asymptomatic patient
Hello, is it common that a CF patient has neither infections nor bronchial congestion? Our son 16 months is completely asymptomatic since birth. Furthermore, is the identification of genetic mutations 100% reliable? Thank you. Best wishes
18.04.2016
Mild CF
Hello My daughter is 2 months old and had positive genetic testing (deltaF508 and 5T) but has a negative sweat test. She has just been diagnosed with cystic fibrosis borderline (moderate atypical). I wish I could learn more by finding people in the same situation and especially about the changes ...
18.04.2016
Melatonin
Hello, my 8-year-old son has cystic fibrosis and has trouble in sleeping. It takes him very long to fall asleep and he joins us in the night. He is followed up by a child psychiatrist who prescribed 2mg of melatonin for 1 month. What do you think? The CF Center pediatrician had prescribed the ...
24.04.2016
CF Treatments
Hi, I'm a CF, I am 15 years old. I am looking for new drugs. I'd like your response. Thank you.
27.02.2016
Medical checkup over the age of 50
Hello dear expert team, I am 51 years old and suffer from CF. I received an information about a medical checkup from the insurance for men over the age of 50. I.a. an endoscopy of the bowel was proposed to be done every 2 years. I am very insecure. In healthy people such a checkup makes sense to ...
07.02.2016
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