Topics

Bone marrow donor
Could people with CF become bone marrow donors?
16.05.2015
blood type and cystic fibrosis
Hello It seems depending on our blood type, that we are less or more resistant regarding some virus, some bacteria. Could you please tell me if researches are performed concerning blood type and immunity in CF patients?
16.05.2015
Pseudomonas
Hello, My two nephews the eldest 4y and the youngest 11m are suffering from CF. They carry the F508del / 3272 26 AG. The youngest has been screened at birth, while the eldest only now (false negative at birth). The eldest had no care for 4 years. Lungs appear more damaged thereby. He just had a ...
03.03.2015
Cystic fibrosis and cigarettes
Hello, I am a mother of a 15-year-old teenager who has cystic fibrosis. I have just learned this morning that last week, she smoked two cigarettes. I wanted to know what can be the consequences of her gesture. I am enormously put under stress. Thank you for your answer
10.12.2014
Correctors and germs
Dear expert team, supposed one of the new drug combinations e.g. by Vertex would be suited for a correction of the homozygous Fdel508 defect, would encourage the cells to take up their tasks to at least 10% until e.g. 40%, and would result in a similar improvement concerning FEV1 and ...
25.11.2014
He CF - she asthma
Hello, is it a health risk for a CF patient if his/her partner has mild asthma? Does the partner with asthma have to be put on par with the partner with CF?
25.11.2014
Do CF patients sweat more?
Dear expert team, do CF patients sweat demonstrably more than healthy people or is this just a subjective feeling? Many thanks for your answer.
03.11.2014
Prognosis of mutation classes
Dear experts, I am always told that the prognosis for CF patients can never be predicted, that it is very different from patient to patient. It would depend on the genes and also on other factors. This is what I know - but as a parent of a CF child one is of course tortured by the insecurity if ...
20.10.2014
Irritating cough
Hello, since a short period of time I have a strong irritating cough, so that I can hardly breathe in between! I inhale Bronchitol® as well as Tobi®! Probably one can help me further! Many thanks in advance, S.
13.10.2014
Worsening of the lung function
Hello, My daughter has been diagnosed to suffer from CF 2 years ago (she was already 17 years old). After the first shock, we have begun to accept the disase. The medical care was very good and the therapy worked well. Her lung function increased concerning the FEV1 value from 80 to 107 in ...
29.09.2014
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