Topics

CF?
I am 31 years old and I lately have the feeling that mucus is slipping down from my nose constantly. During the last years I have constantly “colds”, almost chronically “thin”. Searching for an explanation I found CF. I don’t want to, but should I get tested?
27.01.2014
CF cure
Where do we start to cure CF?
23.12.2013
CF diagnosis in adulthood
Dear, I recently got the diagnosis of CF at the age of 25. After performing a sweat test (result: gray area) and a DNA test, I seem to be genetically homozygous F508del. With this form you would expect serious complaints. Given the late diagnosis, I only suffer from mild CF. Here is my ...
23.12.2013
till what can you speak about
I am 48 years old and know since last August that I suffer from CF, 5T/9T heterozygous and F508del heterozygous. Before that period, I had according to several pulmonologists, COPD GOLD class IV. Since 2003 I go to pulmonologists. My FEV1 was 2.36 L (59 %), saturation at rest 94%, 79% at max ...
23.12.2013
Blood pressure and heart rate in children with cystic fibrosis
Hello Can cystic fibrosis cause problems of blood pressure and / or elevated heart rate in CF adolescents (110 beats / min, he is 14 years old)? Are the two related? If so, would there be a link between cause and effect? Early infection or something else? Thank you very much in advance for your ...
23.12.2013
Mutation T338I
Hello My son aged 22 months was diagnosed three weeks after the postnatal test. He has the G542X and T338I mutations. The geneticist we encountered explained that this was a rather mild form of CF. Our son has five airway clearance sessions per day, salt and vitamins ADEK, no pancreatic enzymes. ...
23.12.2013
Types of CF
Are there several types of CF? If yes, which ones?
23.12.2013
Sweat test
My child is 5.5 years old and sweats too much while sleeping. I have to change clothes 5-6 times a night. I change his clothes and after 10 minutes he is soaking wet. That is why he has frequent coughing and sputum. He started sweating after the age of 3. Up to the age of 3 he had no medication, ...
17.12.2013
smoking passively
Dear questioner, We have an 8-year-old son with CF. We are both non-smokers. But my father lives since recent time with a smoking woman. Because he takes care a lot of our son, I worry because every time he comes back from my father, our son smells like cigarette smoke allover. We have spoken ...
17.12.2013
Role of CFTR protein
Hello, Can you explain in great details the mechanisms of antimicrobial immune defense in CF and the role of CFTR in these mechanisms. Thank you for your answers
11.12.2013
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