Topics

Handling of pets
Dear expert team, my son (14 months old) suffers from CF. My in-laws, who are also our direct neighbours, have many animals (a dog, a cat, chicken, rabbits and sheep). My son is really crazy about the animals, but I am very insecure, in how far I shall allow the contact with the animals regarding ...
16.05.2015
Gardening and kitchen garden
Hello, My 4-year-old CF son has no particular worry like aspergillosis or pseudomonas infection (at least for now). He wishes that we plant flowers and that we maintain a kitchen garden together. I know that the aspergillus is in the ground, the compost etc.... If my son wants to do ...
16.05.2015
Visit water park Neeltjejans
What is your advice in planning a visit with a 6 year old patient with CF to the waterpark Neeltjejans on a blissful summer day? http://www.neeltjejans.nl/waterpark-attracties/
06.05.2015
Brita water filter
Many people nowadays use a Brita water filter at home to make the water lime-free. However, is such a Brita a good idea for people with cystic fibrosis? Because we’re talking about 'stagnant' water ... Thank you for your advice!
25.03.2015
Water from the Rhone River
Hello as a mother of a little CF boy with cystic fibrosis and in anticipation of the beautiful days, I'd like to have your opinion. This summer at the grandparents of my son, the swimming-pool (so contact with body and possibly mouth), a small shower before swimming, but also a small sink in a ...
25.03.2015
Pyo
What does Pyo mean?
13.03.2015
Pseudomonas
Hello after blood tests, my 2.5 year old child was treated with Tobi then inhaled colimycin (because of bad tolerance of Tobi) for 3 months because blood results are very positive for pseudomonas but there is nothing in the sputum. .. but had ciprofloxacin for three weeks with tobi and still ...
08.03.2015
Pseudomonas
Hello, My two nephews the eldest 4y and the youngest 11m are suffering from CF. They carry the F508del / 3272 26 AG. The youngest has been screened at birth, while the eldest only now (false negative at birth). The eldest had no care for 4 years. Lungs appear more damaged thereby. He just had a ...
03.03.2015
Warmwater bath days in the public swimming pool
Dear expert team, in an indoor swimming pool near our home there are so called warmwater bath days (the water temperature is at 31°C). Can my daughter (CF, 2 years old) take a bath there or is it like with the baby pools and jacuzzis and therefore has to be dehorted? If yes, this would ...
02.03.2015
Sputum Cytology Examination (SCE)
Hello, My little son, aged 5, had no sputum culture for several months. Indeed, during the last 3 controls in his CF center, no sample of sputum was possible (nothing back). If during the next visit no sample can be obtained, what is going to happen? How do we know that there is no ...
12.02.2015
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