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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
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- reproduction
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- swine flu_novel influenza
- transplantation
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- ventilation
Topics
- Orkambi or Symkevi - contraception
- Hello, I am thinking about changing from Orkambi, which had a good effect in my case, to Symkevi. In the studies it could be shown that the increasement of the FEV1 lung value is even 1-2% better compared to Orkambi and there should be less side effects. Now my question: can I switch again to ...
- 01.04.2019
- Wish to have children
- Dear team, my partner and I, we want to have a child. Until now, it did not work and now an azoospermia came out in my partner. The urologist said, we could have a genetic investigation done, if he wanted. My husband (31) has no symptoms. He hasn't any problems with digestion, nor with the lungs ...
- 20.07.2018
- c.274-6T>C and ΔF508
- I want to get pregnant and I was tested for CF. I was found to carry the C274-6T>C mutation and the DF508 mutation, one from my father and the other from my mother. It was suggested that my husband must be tested due to the DF508 mutation. For the other mutation I was told that the data are ...
- 20.07.2018
- Genotype 7T/9T & 10TG/11TG
- I am 14 weeks pregnant and I was tested for 99.6% of the CF mutations. No pathological mutation was detected, but the answer wrote "Genotype 7T/9T & 10TG/11TG". Is this something I should worry about? Thank you!
- 20.07.2018
- DF508 in heterozygote state
- After being tested for infertility for 75% (very small number of sperm cells) the DF508 mutation was found in heterozygote state. My wife will get tested for 99%. Must I get further testing? Apart for the infertility issue, are there any issues that I should know about?
- 25.05.2018
- c81c mutation
- My wife is 21 weeks pregnant. She was tested and found a carrier of the DF508 mutation. I was tested as well and I was found to carry the c81c>T mutation. My wife had an amniocentesis. The fetus was found to carry the DF508 mutation and we await the results for my mutation. What are the chances ...
- 09.03.2018
- Stem cells from cord blood?
- Hello, our first child suffers from CF, and we are expecting our second child (healthy carrier). One reads again and again about advertisment for freezing of cord blood after birth. Do you see a potentially advantage in the (far) future of cord blood respectively cord blood stem cells of a ...
- 05.03.2018
- Possibility for pregnancy
- My spouse (male) has CF and carries the DF508 mutation. I am not a carrier, nor a CF patient. Is there a chance for pregrancy?
- 12.12.2017
- High blood pressure (associated to the intake of the pill?)
- My daughter is 26 years old, has CF and persistently high blood pressure, it does not matter which drugs she takes because of CF. She is doing anti-conception with the pill. Can the pill be resposible in CF for causing other symptoms compared to a healthy women, e.g. high blood pressure? Many ...
- 17.07.2017
- Wish to have children
- Hello, my partner is 21 years old and suffers from CF. Half a year ago he has been told, that he has a knot in the tube and therefore it would not be possible for him to have children the natural way. However, a knot can not be felt in the tubes anymore (before one could feel it always); can it ...
- 12.06.2017