Topics

CF and the desire to have children
Dear expert team, I will turn 28 in November, am 1.70m tall, and weigh 45kg. My FEV1 has been stable at 52% for the past 15 years. CF has not been proven genetically but was diagnosed symptomatically. My fiancé is fit as a fiddle except for a thyroid dysfunction. We have good family support at ...
19.11.2009
Corrector- and Potentiator-drugs and male fertility
Dear expert team, do correctors and potentiators such as VX 809 and VX 770 influence presumably the male fertility in case of delta F508 being positive? I do not expect a binding answer - assumably there will be no tests available at the moment - only if these new drugs could have theoretically ...
02.11.2009
Children
My former girlfriend told me that she was pregnant but that the “child” died because of her medication for CF. I don’t believe her because I haven’t heard about something like that. Most people around me think that this story is very vague. Can you help me understand this?
19.10.2009
Genetic screening
We have a five year old daughter with CF. 3 years ago my wife got pregnant but she had an abortion because the fetus was diagnosed with CF. Which procedure should we follow in order to have a child without CF?
19.10.2009
Cystic fibrosis death and IVF
Two years ago my sister died from CF. I would like to know if the fact that she was conceived through IVF mattered.
27.07.2009
Fertility
Hello, I want to ask - I am 16 [we assume that the questioner is male, comment from the coordinator] and I have CF and I want to ask...fertilization how should I know
16.07.2009
Pregnancy with CF
Dear expert team, many thanks for your numerous helpful clues you have already given! Especially I want to confirm your assumption, that oral mucolytics (e.g. acetylcysteine) could have a negative influence in case of wishing to have a baby: in december, after many years of (almost) continous ...
12.06.2009
CF excluded but a mutation R117H
Dear ladies and gentlemen, I am 33 years old with CF, my daughter is 7 years old with CF and my son is 14 years old. To him, a CF had been excluded via potential difference/ molecular genetic / sweat test in two different hospitals. But my son ought to be affected by a not-known mutation and he ...
26.05.2009
Diagnosis
My daughter has CF Delta F508. Because I have reduced fertility we went to a infertility clinic. Eventually after 10 trials 1 sperm cell was brought into an egg cell and my daughter was born from this. I myself have many physical problems such as nasal polyps, lots of problems with my joints and ...
27.04.2009
Children
Dear expert team, I am male and 29 years old. At the moment, I concern myself about the thought of a child. Could you tell me how the chances are and if it is possible for a male to have children, as they say that men with CF are in general sterile. How is the procedure passing with in-vitro ...
09.03.2009
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