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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Women over 35 years / climacteric period
- Hello, I am looking for information about the climacteric period in case of CF, is there any information about intake of hormones, Orkambi, transplantation and gain of weight? How does the metabolism change? What does this mean for women with CF? In general I am looking for information around ...
- 28.04.2017
- Pregnancy and aerosol
- Hello, Mum of a 20-month-old CF baby, I just learned about my new pregnancy. While waiting for a prenatal test to know if the child is affected, can I continue to administer tobramycin and colistin aerosols (and pulmozyme in the morning) alternately twice a day. Knowing that during aerosol ...
- 13.04.2017
- Pregnancy, Patiente and aerosoltherapy
- Hello, I suffer from CF and in the second months of pregnancy. Can I continune my aerosol therapy with rhDNAse (Pulmozyme), colistin and tobramycin? What about the oral antibiotics (azithromycin etc)? Or what about potentailly necessary i.v. therapies? Is this without danger for my baby? Many ...
- 13.04.2017
- Neonatal diagnostic
- Hello, I would like to know to what extent a choriocentesis conducted for screening for cystic fibrosis can be reliable. Can not the sample be contaminated by the blood of the mother? Is it mandatory to wait at least for the 10th week of pregnancy to perform choriocentesis? Without counting the ...
- 14.02.2017
- To have children - CF in the family
- Hello, the good brother of my husband has a child with CF. Now my husband and I think about family planning and we are asking us the question, if we were carriers. Can we have a test done for free? According to our general practitioner, we have to pay the test ourselves (7000 Euros). Can the ...
- 20.01.2017
- Sexuality and libido
- Hello I'm a 23-year-old CF woman. For 3,5 years I have a boyfriend and I have great difficulty with sexuality: I am more often tired and I have a "sensitive" cervix (inflammation). I bleed after every sexual relation (this problem has been seen and reviewed several times with a gynaecologist and ...
- 07.11.2016
- Nuvaring® and levofloxacin
- Are there any interactions between Nuvaring® (vaginal ring releasing hormons for contraception) and levofloxacin 500? I took it for 7 days. I have started last week on wednesday and stopped yesterday. I have taken the ring our last saturday and will put it in again on the coming saturday. Is this ...
- 07.10.2016
- Pregnancy and CF
- Hello, I have an urgent question. I am 26-years-old and weigh 54kg. I only inhale with hypertonic saline 6% 2-3 times a day and use salbutamol spray 2 times a day. Additionally, I take Kreon. I got pregnant with the permission of my CF physician via in-vitro fertilization. My lung function was ...
- 05.08.2016
- Contraception
- Hello, I am carrying the F508del, I am 21 years old I am diabetic and I have a thyroid dysfunction (hypo) and I take the pill "leeloo®". I saw several articles on the need to focus most heavily dosed ethinylestradiol pills. Concrening CF articles I see the opposite. What is that about? In ...
- 20.06.2016
- Transmission risk
- Hello We are expecting a boy. As part of prenatal diagnosis, the father and I made blood screening for cystic fibrosis. Initially, the results came back negative (with the set of the thirty most common mutations). However, this Friday we learned I was carrying an unknown mutation of the gene ...
- 13.05.2016