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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Positive influence of the air at the North sea
- Dear, I have 2 questions - Can the composition of the air in the area of the North sea diminish respiratory symptoms in patients with CF? - Is there a positive influence of the composition of the air at the North sea (salt-iodine) on the progress of lung damage in patients with CF? I realise ...
- 01.09.2011
- Metagenome, type of intestinal flora and cystic fibrosis
- Hello, Are there currently studies or research on the intestinal flora in patients with cystic fibrosis (impact of meconium ileus & of pancreatic insufficiency on the flora, one of three intestinal groups more present or not etc ...)? I refer to the project MetaHIT (Metagenomics of Human ...
- 01.09.2011
- Severity of CF
- If CF related liver disease or CF related diabetes occur at an early age (i.e. before the age of 4) does that influence survival?
- 05.08.2011
- CFTR related disorder
- Since some years, my 12 year old son has recurrent lung infection with production of sputum and slow regression of symptoms. He was admitted to hospital and had several courses of IV antibiotics. Now, for the second time, he had a pseudomonas infection. After many examinations, all known ...
- 05.08.2011
- Info or instruction for daycare or school?
- Dear, Is there a ready made CF information leaflet for school or daycare? Preferably not longer than an A4 with a short intro of what CF exactly is. Why Creon is important, little specifics you should know (for instance not mixing enzymes with the food). I want to make such an info leaflet, but ...
- 05.08.2011
- Salty sweat
- Dear, I would like to know why the sweat of a CF patient is saltier. I do understand the function of the CFTR protein. But that is just my problem. A CF patient has no chloride transport out of the cell. How comes it the sweat is saltier? Thank you in advance! Best regards,
- 04.08.2011
- Pancreas
- In me, CF has manifested itself in the pancreas. What is my life expectancy? I am at present 57 years old.
- 04.08.2011
- Production of mucus
- Dear CF-team, which factors influence an increased production of mucus (apart from Staphylococci and Pseudomonas and other germs)? I do not have any germs in my sputum, however despite this, a very high production of mucus in the lung (100ml daily). Would a special diet be an option (e.g. few ...
- 01.08.2011
- Odd behavior of girlfriend with CF
- Friendly Greetings, My girlfriend is from the USA, I am myself from The Netherlands. My girlfriend claims she has a heavy form of CF and won't make the age of 26 (currently 24 years old). Also she claims with this she needs to go to the hospital all the time and even gets hospitalized for most ...
- 09.06.2011
- Obstipation, reflux
- Since birth we worry about our little boy. He is 6,5 months old and it so happens that he has gastroesophageal reflux and constipation. He also coughs a lot and appears to have swollen tonsils. My nephew has CF. Our little boy is growing well. Do you think we check whether he has CF?
- 03.05.2011
