Inloggen
Voer uw gebruikersnaam en wachtwoord hier in om in te loggen op de website:
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Also CF?
- My daughter is 14 years old, and physically disabled (exstrophy of the cloacae). In the last years she has had many pneumonias, often bronchitis, problems with diarrhoe...In the mean time she has been diagnosed with: extreme short stature, asthma, celiac disease (not approved via investigation of ...
- 09.11.2009
- European CF Wareness Week
- Can I order bracelets to participate in the European CF Awareness Week?
- 19.10.2009
- CF Centre
- I’m a 41-year old man and at young age they incidently discovered that I have cystic fibrosis. Because I’m not often sick not a lot was done about it. At a later age it appeared that my vas deferens is not well developed and recently (probably already several times) I had pancreatitis. On ...
- 20.07.2009
- atypical forms of cystic fibrosis
- Dear experts, I would like to know more about atypical forms of cystic fibrosis and tests, especially forms with involvement of the digestive system and the pankreas. Are there forms of Mukoviszidose without an involvement of the lung or at least a very late involvement of the lung within the ...
- 20.07.2009
- alcohol
- How is it with alcohol use and cystic fibrosis ?
- 13.07.2009
- Survey
- Please could you advise me which are the best validated & accepted survey questionnaires designed for adult and adolescent CF patients to: ascertain their knowledge of CF, quality of life satisfaction with the CF services they access.
- 13.07.2009
- Thick mucus
- For school I have an assignment on CF. Could you help me with my manuscript ? It should cover symptoms, signs, treatment, what you feel and when you have the disease. thank you very much
- 13.07.2009
- Cystic Fibrosis and sex ?
- Hello, my name is Jokke and I have a question about Cystic Fibrosis and sex. My girlfriend has Cf and we’ve had a couple of times (oral) sex. But since I’m seeing her I also have trouble with mucus in my throat what I spit out. The mucus is rather thick but I can manage to spit it out after ...
- 13.07.2009
- Course of borderline-CF
- Dear expert team, for just another time I have a question for you: My daughter, nearly 5, mutations R116X/R1048G did up to now have only slight problems with her CF. This winter she has had infections more often, which had to be treated with altogether 6 antibiotic therapies. At the half-year ...
- 30.06.2009
- Can the diagnosis be taken back?
- Dear expert team, you have already helped me once. Many thanks for that!! In my little son (now nearly 7 months old) CF has been diagnosed via the Newborn Screening. According to the genetic analysis he has two times F508-mutation. He has that with the pancreas and nothing else. He has never had ...
- 22.06.2009
