Topics

Help
Hello. I would like to help people with this disease. My life changed when I found out about this disease through one singer who suffered from it. After his death, an organization was founded in his name to help those in need. In this way I would like to turn to you to ask about how I can help ...
22.01.2009
CFTR-related disorders
In case of suspicion of CFTR-related disorders, where can one search for information?
20.01.2009
cystic fibrosis - problems with medical care
Hello, We have a 5-year-old daughter suffering from CF. Our child is in the care of only one doctor, who is taking care of all CF patients in our province. In the past two weeks we tried to contact our doctor, but unfortunately her mobile phone is switched off. Our daughter underwent antibiotic ...
20.01.2009
Another question
Thank you for your quick answer. We received a call today. Our daughter has a protein and fat intake disorder and we have to take another sweat test tomorrow. She is taking pancreatin now. Our pediatrician thinks it could be a sub-group. Does something like that exist?
08.01.2009
Statistics
Good afternoon, I would like ask you for an advice how I may acquire some statistical informations about cystic fibrosis. I study at Slovak Health University and I need this data for my health statistics semestral work. Thank you.
22.12.2008
Cystic Fibrosis
My daughter has an elevated sweat test value. 60-80 would be normal. She is at 75. The test was done due to an anal prolapse, and she is also small in stature. The test will be repeated in February. I am all run down. The doctor says there are 1200 sub-groups and the disease will not necessarily ...
05.01.2009
Classic CF
Hello, our CF doctor told us that our son (now 10 weeks old) has classic CF. Until now (thank god!), he only has a pancreatic condition. After numerous tests, all other organs are normal. Nevertheless, apart from pancreatine, he is getting a vitamin compound and ACC juice and is gaining weight ...
01.12.2008
Greasy and smelly stools
Why do people with CF have stools that look greasy and smell badly?
24.11.2008
cystic fibrosis
1. Who can disprove fixed cystic fibrosis diagnosis (no CFTR gene mutation; chlorine in sweat: 81 mmol/l, 51 mmol/l, 10 mmol/l, 12 mmol/l, 49 mmol/l)? 2. Does belong invalidity benefit (child has 18 years old) if cystic fibrosis diagnosis is not disclaim? 3. Why prof. Kiauleikienė ...
24.11.2008
discussion
I would like to keep in company with parents who have children with cystic fibrosis.
20.08.2008
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