Topics

Perfume (fragance) diffusers
Hello, Do you think that synthetic perfume (fragance) diffusers may be dangerous for lungs? Can we use them when our 2 years old girl is in the same location? Best regards. Thanks.
15.11.2012
Lung function
How to improve my child's lung functions (from 55% at present) and slow the further damage?
15.11.2012
Lung cilia
Hello Results of Brice Marcet (CNRS [National Center for scientific research], Sophia-Antipolis, France) concerning the identification of molecules that promote cilial growth of epithelial cells are good news but I imagine that we should be cautious before being too exited. However, could you ...
15.11.2012
Scedosporium
We just discovered my 12 years old CF son had Scedosporium. His FEV1 went down to 80%. Is there a treatment against this fungus to help recover his FEV1, that was always 100%? I am worried.
15.11.2012
Liquid sputum in the morning
Hello, I am 39 yr old CF patient with F508 del mutation. I am chronically colonized with P. aeruginosa and I have few exacerbations that I can usually handle properly. Since February (and my last antibiotic course), my sputum has became very liquid in the morning, which is disturbing. I have ...
15.11.2012
SPLUNC1 protein
Hello Could you give some information concerning SPLUNC1 and its effects in cystic fibrosis? Do we know well this protein or is it only the beginning of the research? Are there studies planned ? Thanks for your answer.
14.11.2012
Azithromycin
Hello, I am 37 years old and have CF. I am currently taking azithromycin again. Are there any long-term studies on the effects of this drug? Improvements in lung function, etc.? Many thanks.
02.08.2012
Looking for a further spasmolytic I do not know by now
Dear expert team, Before each colistin inhalation (I am resistant to other antibiotics by now), I am using currently the following drugs in a 4-day alternation: Atrovent® (ipratropium bromide) alternating with Berotec N® (formoterol) aerosol and Sultanol® (salbutamol) aerosol. In the mornings ...
02.08.2012
Very rare mutation
Hello, I appeal to you because I can not find on the internet the answer to my question: I was diagnosed with CF at the age of 5 months with Pseudomonas aeruginosa colonization from the beginning. I wanted to know if it was serious knowing that today I am 19 years old? And my mutation is the ...
23.07.2012
LVRC (Lung Volume Reduction Coil)
Hello, I (45, male) have an emphysema stage III and I would like to know if LVRC (Lung Volume Reduction Coil) could be a future method to increase FEV1 a bit… Thank you very much.
19.07.2012
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