Inloggen
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Gain or damage by CT scan
- What is the indication to do a CT scan in a 2-year old child with CF? What can we decide from that?
- 08.05.2012
- Thoracic hyperinflation
- Hello, The last thoracic X-ray of my 3.5 years-old daughter revealed a thoracic hyperinflation. What does that exactly means? Is it temporary or permanent? My physiotherapist told us that a belt could help her. How considering the follow-up when such a hyperinflation is observed at a such young ...
- 07.05.2012
- Blueish tongue
- Should one be worried when one repeatedly has blueish discoloration of the tongue? Is this a sign of shortage of oxygen? Can it occur in young children? Is it part of CF?
- 03.05.2012
- MRI, CT
- Why do people with CF need a CT or MRI scan? What are the pro’s and con’s. Especially with regards to children.
- 02.05.2012
- How to react to an inexplicable decline in lung function?
- Dear expert team, I am 24 years old and have CF. As a basic therapy, I have been inhaling colistin, salbutamol, Atrovent® (ipratropium bromide), saline solution 5.85% and Viani mite® (fluticasone/salmeterol) long-term. In addition, I take azithomycin orally, 3x500mg per week. My diabetes is ...
- 24.04.2012
- Physiotherapy and pneumothorax
- Can you practice physiotherapy sessions in case of a pneumothorax drained? If so, can it have adverse effects (make the drain bubble)?
- 22.03.2012
- treatments
- In which situations can anti-inflammatory drugs (steroidal or non-steroidal) be used to treat cystic fibrosis (CF)?
- 22.03.2012
- Lung Clearance Index-European location
- Dear questioner, First of all thank you for your prompt answer. I am interested in taking the Lung Clearance Index test in a European country where we can comunicate in english/french and where it isn’t so expensive. I am thinking first of Vienna or Spain (if we can comunicate in english) or ...
- 22.03.2012
- Pulmonary arterial hypertension
- Hello, What are the consequences of pulmonary arterial hypertension (PAH) in patients with cystic fibrosis? When does it occur? Is there an increased risk of mortality? Otherwise, are sports to be banned?
- 27.02.2012
- follow up the disease
- My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). How do you recommend to treat the baby so that we do not tantalize with many investigations but also keep on eye on the disease. E.g. it was recommended to me to do monthly analyse of sputus, but I see ...
- 24.01.2012