Topics

Ascites puncture (paracentesis)
Dear expert team, From what point onwards can ascites puncture (paracentesis) out of therapeutic indication (rapid relief of dyspnea or abdominal pain as a result of large amounts of ascites) make sense? Is it likely that ascites will reoccur in the stomach soon? Kind regards.
30.07.2012
Duchenne muscular dystrophy and PTC124
M sun age 10 has Duchenne muscular dystrophy. Please how can I get the ptc 124 drug?
23.07.2012
Emergency water supply -- what to do?
Dear expert team, due to road work until September 2012, our village has installed an emergency water supply system with thin hoses (4 cm in diameter) which is supposed to be put into operation next week after flushing and disinfection. According to the person in charge, this is permissible ...
19.07.2012
cystic fibrosis and the use of air freshener
Is it safe to use an air freshener (in this case fabreeze®plugin) around the home
09.07.2012
Contact lenses
My daughter would like some contact lenses and I do not know if it is safe.
09.07.2012
What is the effect of Manuka-honey?
Is there any effect of Manuka-honey? I have read that some CF patients eat Manuka-honey...I have read this in connection with MRSA, according to another forum, the quite expensive honey is supposed to alleviate digestive problems. Could you say something about the possible mode of action? Is ...
02.07.2012
perspiration odor
Hello, I have CF with significant symptoms recently (2789 5G coupled with D508) I'm 50. I noticed recently a change in odor of my sweat: the soap is not enough to stop it. Previously I was sweating a lot, but was almost odorless. Do you think this much stronger smell means worsening of the ...
11.06.2012
problems with adhesive bandages
Hello, CF patients present two types of problems with conventional sticking plaster: - Allergy - Adhesion problems due to perspiration. Could you advise us which adhesive bandage are really suited for each problem? Moreover, in our hospital, this problem is unknown from the staff and the ...
22.05.2012
Keratoconjunctivitis (sicca)
Dear expert team, I would like to ask you whether there are any treatment options concerning the above diagnosis. I.e., are CF clinics specialized on giving advice? I really suffer from this sicca syndrome (CF patient, 45 years old). I have already tried a lot of different eye drops. My ...
18.05.2012
Bathroom refurbishment
Hello, Our new landlord would like to completely refurbish our bathroom (built in 1970). He wants to put in new tiles, take out the bathtub and build in a wider shower. Since our son is already chronically colonized with PSA, we are worried 1) that even with protective foil on the door, ...
15.05.2012
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