Topics

pain in a young child
My 4 years old CF daughter complains for already one year about acute and very frequent pains (3 - 4 times a week) in legs (knee, ankle). Especially after intense physical activity. It wakes her at night frequently. Nevertheless, no redness, nor heat. According to the CF centre, it is not an ...
18.01.2011
Sleep disorders
In young CF children (2-3 yrs old), is there more sleep disorders secondary to gastrointestinal troubles?
13.01.2011
Can a cystic fibrosis patient give his organs for transplantation ?
I would like to know if a cystic fibrosis patient can give his organs ? I imagine the answer is no, because no one would like to receive organs with such a disease, but perhaps some organs less injured by CF could be given to save the life of someone. Is it possible for a cystic fibrosis patient ...
11.01.2011
Pain
Hello, My daughter with cystic fibrosis (26 years old) has pain in all joints, she suffers a lot. The doctor of the CF centre gives her ibuprofen, but it does not relieve her a lot. Can you tell me if there is anything else to do? Thank you for your reply.
20.01.2011
Health problems
Hello, My daughter was diagnosed with cystic fibrosis in january at the age of 8 years. My problem is that she complains of headaches, sleep disturbances and belly ache every evening and the pulmonologist tells me that it has nothing to do with CF. I am worried; can these problems be related to ...
11.01.2011
Small body height
Dear expert team, My son has been diagnosed with CF at the age of 9 months. He has been breast-feeded until the age of 6 months. Until this point in time his body height lay exactly on the 50th percentile, his weight slightly higher on the 75th percentile. As the breast-feeding ended, he did not ...
09.12.2010
CF and growth hormone (GH)
Hi! My 11 years-old daughter visited the endocrinologist who proposed to treat her with GH because her expected adult height will be 1.45m. Supposing she will not be again treated with itraconazole, a period responsible for a 2 years of bad weight and height gain, my question is: the CF treatment ...
09.12.2010
CF and celiac disease
Dear expert team, is there a correlation between CF and celiac disease? Would it be possible, that the bowel is damaged in an undiagnosed CF in that way, that it gets extremely hypersensitive and shows similar symptoms as celiac disease? My hope is still that in well adapted creon dosages the ...
29.11.2010
Haemoptysis - numbness
Good evening! I am 23 years old and suffer from CF with df508 mutation. I have many bronchectasies and since some time ago I cough out blood every day, even in small quantities in my sputum, or on its own. The last 1,5 year something strange came up. Sometimes I cough, I have haemoptysis, even a ...
18.11.2010
House building with clay
Hello, We have a son (4 years, CF) and like to build a house because we had mould in the kitchen of our rented apartment several times. We would like to build a house made out of clay or rather clay building boards. Can this be recommended for CF individuals? Greetings, Eva with Willi
11.11.2010
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