Topics

Baby does not gain weight (is completely breastfeeded)
Dear expert team! My son (4 months old, CF) has hardly ever gained weight since weeks. The diagnosis was made when he was 5 weeks old and the therapy was started right away. From that point of time he gained weight to our satisfaction. When he was 2 months old he had an apparently ...
17.11.2008
Again ADHD (attention deficit hyperactivity disorder) and Cystic Fibrosis
Thank you for replying [refers to an answer given to an earlier question about ADHD]. But one question that is important to me is still open: Which interactions are know between Methylphenidat and antibiotics? In several discussion forums about ADHD one can find the statement that  ...
20.11.2008
ADHD (attention deficit hyperactivity disorder) and Cystic Fibrosis
Our son (18) suffers from CF (permanent antibiotic treatment etc. for the last 15 years). Even since the earliest childhood he showed the typical symptoms of ADHD (attention deficit hyperactivity disorder), a final diagnosis has not been made yet. (My suspicion is that the physicians are reserved ...
20.11.2008
Tumor-markers elevated in CF??
Hello, Is there any statistical data that in CF so-called tumor-markers (CA125, C19-9) can be elevated as a consequence of the illness of CF? Years ago, the C19-9 had been elevated, an MRI of the pancreas did not show any result; now the CA125 is slightly elevated, which, according to the ...
20.11.2008
Badly worsening of the eyes/astigmatism
Dear experts, I am 33 years old and suffering from CF and from astigmatism of the eyes. There is a very strong worsening of my visual function from -3.50 to -7.50 for the right eye and to -6.50 for the left eye and without a visual aid I have only a visual function of 50% left. I am now very ...
20.11.2008
Increased temperature
Hello, I (31 years old, female) am suffering for more than 2 months of daily increased body temperature (around 37,8 – 38,0), which does from time to time develop into fever of 38,5 – 38,7. In addition, I feel very exhausted and get tired easily. During the i.v. therapy the temperature came ...
17.11.2008
Paresis of the diaphragm
Dear expert team, for several months, I am suffering of an idiopathic paresis of the diaphragm. The conductance of the phrenical nerve is diminished and as a result the diaphragm shows a slight high stand on the right side. I have already experience in CF for 38 years and I did loose 800 ml of ...
20.11.2008
Mould in the appartment
One week ago, I discovered mould at the wall of the appartment. In the room of my daughter. The house management treated it superficially and the wall was repapered. My daughter suffers for months of a sore throat in the morning and often of pain in the joints. We have often been to the doctor, ...
10.11.2008
Examination by heart catheter
My son, 30 years old, advanced CF, runs an increased temperature of about 37.8 degree Celsius in the evenings. His doctor obviously does not attribute this to pneumonia. He rather wants to search for bacteria on the heart by heart catheter. I never heart of anything like that in connection with CF. ...
07.07.2008
alopecia (see question "Hair loss")
For 10 years I have alopecia. All laboratory tests are normal. Nobody can explain it.
10.06.2008
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