Topics

Living in Morocco
Hello, I would like to join my husband who works in Casablanca with my CF baby. I wonder if my child's insurance coverage will keep going and what steps are upcoming. Thank you for your help.
10.09.2014
Test for Cystic Fibrosis
Hello, my question: is the test for CF available in Paraguay? Best regards, Mrs. S.
18.08.2014
Cortisone and problems with the teeth
Dear expert team, I suffer from CF and take for 3 months cortisone, at the beginning 50mg a day, in the meantime only 10 mg. For about one month I have out of a sudden teeth, that are very sensitive to pain. The dentist could not really make sense of it and advised me, to use special toothpaste ...
21.07.2014
CF patients meetings and organizations in Romania
Hello, I myself have a question about meetings and updates related to patients with cystic fibrosis in Romania. Where I could sign up to receive the data? Thank you!
14.07.2014
intravenous antibiotic treatment /home
Hi,I am from Hungary and my sister has CF. She is 19 now. She has been doing well but just this week it was considered that after the 21 days tobramicyn treatment she has too much mucus. She can not breath poperly probably due to bronchial problems / may be bronchiectasis (never before). She has ...
08.04.2014
Moving to the USA
Hello, I am 30 years old, I am a School teacher and I would like to teach in the USA. I will be in the status of expatriates or I'll be sent for national education. How will my health care be supported there? What should I do for my care is fully supported? Thank you in advance for your ...
24.03.2014
Differences between CF Centres
Hello Will there one day be a "consensus" between CF Centers? Indeed through testimonials from parents of CF children it’s noticable that each CF Center allows or prohibits some activities or travel. Opinions may even differ in a given CF Center ... Why has one child the right to go to Tunisia ...
24.03.2014
Ultrasonic tooth brush?
Dear expert team, our son (15) has constantly tenacious dental plaque. The dentist recommended an electirc ultrasonic toothbrush to him. Are there any concerns about this, can one eventually use it with boiled or sterile water? Many thanks in advance for your advice.
24.02.2014
Oxygen supply of the lung
My 7-year-old daughter is under medical treatment in Spain since her 3rd month of life. She is suffering from CF and has now a lung volume of 35%. A transplantation is urgently necessary. For 10 month we have liquid oxygen for breathing via nasal tube at home. The physicians have NEVER offered this ...
24.02.2014
Living in the United States of America
Hello, I am 17 and I have Cystic Fibrosis. I wish in the near future to live in the United States of America but I do not know how this great country treats people with Cystic Fibrosis. Are there CF specialized centres? Thank you in advance;-)
10.02.2014
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