Topics

Holiday camp
Hello, Our 13-year-old son would like to spend his next summer holiday in a camp, or at least have a bit of an “adventure.” He is chronically colonized with PSA (encapsulated as well) and has to inhale Pulmozyme® and colistin on a daily basis. FEV = ca 95% and quite resilient. We cannot ...
23.12.2011
Pseudomonas
Hello, my daughter is three years old and has CF. I would like to know whether she can play in the yard. She likes to go out into our yard and plays with dry soil.
13.12.2011
P. aeruginosa
Hello, I am starting to collect information about whal will my nephew with CF be able to do and not to do as he gets older. I have read, that bacteria Pseudomonas is very dangerous for this children. How is possible to be infected with Pseudomonas? Is it possible to be in the garden? How is ...
22.11.2011
Pseudomonas
I have pseudomonas and I would like to know if I can pass it on a person who doesn´t suffer from CF but has prolonged low immunity because of flu. I would also like to know if there is any risk that I might endanger the health of a newborn child who is otherwise healthy.
16.11.2011
City or country?
Due to financial difficulties we may have to move to the country. We live in a provincial city in a flat. At the village there is a garden, flowers and animals. What should I watch out for? What prerequisites are necessary? What must the child avoid? Can this change bring harm to our child?
05.12.2011
How certain is the treatment for pseudomonas?
a)When someone is treated with ciprofloxacin for quite sometime with negative pharyngeal cultures and continues to take the medicine for a little while longer, what are the chances of getting reinfected with pseudomonas during the course of treatment, or immediately after its termination? What are ...
29.11.2011
CF camps
Why are CF camps no longer allowed? You can catch pseudomonas bacteria from other people (non CF) as well, isn’t it? Also, I can’t find clear (general) ‘conduct’ rules for people with CF. Do you know where I can find them?
31.10.2011
P. aeruginosa and horse riding
My eight years old little boy is willing to practice horse riding. But I read that some animals carry P. aeruginosa and that we had to be careful concerning the risks of transmission while riding. Could you please give me more precise information on the subject? Thank you.
10.11.2011
Grape seed oil
Have you heard about the potential effect of grape seed oil against pseudomonas?
27.10.2011
Swimming or something else?
My daughter likes swimming. Would she benefit from swimming in a pool? I visited the venue, the pool in open aired, but the inside of the building is very humid, with water everywhere. I would say that it is very clean, and there are a lot of people, aged 3-18 years. In the mornings everything is ...
25.10.2011
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