Topics

Treatment of Pseudomonas-colonization
Hello, I am 20 years old, male, CF, until now mild course of the disease. Besides Staphyloccus aureus, now Pseudmonas-germ has been found. How are the actual options of treatment? Is one now all the time susceptible to Pseudomonas, in case the germ can be eradicated with antibiotic-therapy and ...
04.10.2010
Querries
(a) In less than twelve months a baby has undergone sterilization and a few months later is on ciproxin & tadim again. Does this mean that pseudomonas has settled for good and the real pulmonary problems have already started, or is it just symptoms? (b) How much does the medication affect the body ...
14.09.2010
Paddling pool (children's pool)
Would it help to put chlorine tablettes into the water of a paddling pool to leave the water for 2 to 3 days in the pool? Our pools contains 75 L of water and it is merely a question of costs... Many thanks
13.09.2010
Antibiosis treatment standards
Hello, how do you explain the fact that different clinics follow different treatment strategies? Specific example: i.v. antibiosis regularly or only when needed – see the Danish model. Should one not assume that the standard of knowledge is the same throughout one country, or that after ...
13.09.2010
Planning our holidays
Hello, Last year we were at the North Sea. (…) This bring me to my question… This year we are planning to spend our holidays in Austria, but we are not sure about where exactly we should go. We are wondering if we should chose an accommodation directly at a swimming lake or on a mountain ...
23.06.2010
Ground water and Pseudomonas
Hello, could you tell me whether I have to worry about Pseudomonas in the ground water which is conveyed with a house pump? My daughter is nearly 2 years old and I question whether it is safe to water the flowers, wash the car or fill the swimming pool, since there are aerosols which might reach ...
26.04.2010
Two CF children in same class
Hello, Our son (7 years old, CF) and another girl with CF are in the same class. With regards to social aspects we do find this positive. However, her health condition has now deteriorated (transplantation is planned). Since four weeks she is Pseudomonas positive and a therapy with antibiotics ...
23.04.2010
Eradication of Pseudomonas - new therapy
Hello, after 1 year I again became a PsA, otherwise I have only Staphylococcus. My doctor read about a new therapy for the eradication of PsA, I want to know if you also have success with that. I get 500mg tablets Ciprofloxacin, Azithromycin tablets and tobramycin to inhale for 3 weeks. Before, ...
20.04.2010
Is a saline grotto beneficial for a CF child?
Dear experts, A saline grotto opened close to where we live [a link with further German information was given]. Our CF child (6) has problems with the upper airways, the nose is never completely clear despite inhalation with Pari Sinus and nasal wash (nasal polyps are not that big; an operation ...
14.04.2010
Humidity in the bathroom
Dear expert team, we are currently looking for a rented apartment and have realized that only very few of those offered come with a window in the bathroom/toilet. Since our 12-year-old son has chronic PSA, this has been a knock-out criterion for us up to now (the possibility to air the bathroom ...
08.04.2010
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