Topics

ileostoma
I am from Kosovo.I have a daughter with CF 5 months old. She was born with MI (mekonium ileus) and had her first surgery at two days old,and had ileostoma. Second surgery was done after 4 months but there where some complications so she was operated two more times,So she had three surgeries ...
19.01.2009
Articulation
Is there a link between CF and problems with articulation?
01.12.2008
CF and kidney disease
I would like to know what is known about kidney disease and CF. My daughter of 37 has CF and recently started on dialysis as well. She has a mild form of diabetes, injects 4IU per meal but has serious diabetic complaints. At first it was a mystery; she has been unexplainable very ill.  ...
27.11.2008
joint problems
My 13 year old daughter has CF and since 3 years now can’t stretch her fingers. Her joints are swollen and she has difficulty stretching her arms. Apart from not being able to stretch the fingers they function well. She has been free of severe lung infection for the last few years, but takes ...
04.12.2008
nasal polyps
What about nose polyps and CF?? My 8 year old son has nasal polyps. He had surgery 3 times but these polyps grow back every time
13.11.2008
Pseudomonas
Hi, I am 25 years old and have very severe asthma which is but difficult to be hold at bay with all drugs available (Symbicort, Singulair, Decortin 7,5mg, Sultanol forte for Pari boy...) I permanently have infections and I had three bouts of pneumonia within a bit more of one year. Now an ...
22.12.2008
Pregnancy
I am 32 years old and suffering since my first year of life of an asthma. Now we would like to have a baby, but I have some concerns and want to have it made clear for myself first, as it is me who have to carry the child to full term. For the last 25 years I am taking the following drugs: ...
21.04.2008
Pregnant?
I am 32 years old now and I know that my husband would like to have a baby. Of course me, too! But I am a bit more sceptical and I am afraid that I am going to do harm to the baby during pregnancy as I am taking drugs since my fifth year of life: 8 mg prednisone 500 mg theophylline L-Thyroxin ...
23.04.2008
Arthritis and CF - how to treat
I am a near 40 year old female with CF. The last 15 years I have suffered form arthritis, and the last 6 years it seems to have exploded. All of my fingers are now affected, and I have had several surgeries to remove destructions and to permanently stabilize joints, thus leaving my fingers stiff. ...
08.07.2008
Distented stomach
My daughter is 2 years old and was born with a meconium ileus. Therefore the diagnosis of CF was made very quickly. She has had an artificial anus that has been reposed. Since then she suffers from an extremely distended abdomen, in the ultrasound you see very very much air in the stomach and ...
08.07.2008
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