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Topics
- Genetic therapy heterozygous DF508
- Hello, how far is research concerning DF508-heterozygous patients? Are there first study results, when can one expect a licensing in case of promising results? Thanks!
- 12.06.2015
- Delta F508 effective 2015
- Hello, my 12-year-old daughter suffers from the above mentioned mutation. I have heard, that there is a drug available in the course of this year. Is it true and how does it act? Thank you
- 04.06.2015
- G551D/S549R Kalydeco® - yes or no?
- Hello! Our daughter has been diagnosed lately at the age of 6 years. She has a marked pancreatic insufficiency, for 1.5 years a stagnating course of height and weight, furthermore an FEV1 value of 111%. Staphylococcus aureus and Haemophilus influenzae have been there for a short time, however have ...
- 16.05.2015
- Phage therapy
- Dear ladies and gentlemen, in the past, it has been written quite a few times about this topic, but as some time passed inbetween, I ask myself, if there are important findings. My husband (30, CF), has for about 10 years the germ Achromobacter xylosoxidans in the sputum. This germ did until ...
- 16.05.2015
- Acting mechanisms of Ivacaftor and Lumacaftor
- Hello, I have a question about the acting mechanisms of Ivacaftor and Lumacaftor. In how far do they change the molecule respectively which biochemical processes are involved? Best regards
- 06.05.2015
- Genotype F508del/1717-1G>A and clinical trial
- Hello, First thank you for your site and your answers! Here's what I read in the search results. "Currently, four Phase 3 studies are underway for VX-661 (100 mg once daily) in combination with ivacaftor (150 mg every 12 hours). One of those studies is in people with two copies of the F508del ...
- 06.04.2015
- Cystic Fibrosis
- What are the new therapeutic perspectives?
- 13.03.2015
- clinical trial
- Hello Is there any clinical trial regarding patients with mutation G542X/Delta F508 ? Thank you
- 13.03.2015
- Ivacaftor and Lumacaftor combination
- Hello, Could you tell me if this combination (Ivacaftor/Lumacaftor) has a marketing authorization and whether it is already prescribed by the CF Centers for delF508 mutations? Thank you,
- 13.03.2015
- Research for F508del heterozygous
- Hello, I would like to know about the research for people with CF with only a single gene of this type (F508del). Thank you in advance
- 13.03.2015