Individualized education plan (IEP) at school
Hello. My daughter starts school in September. I've asked the CF centre following my daughter if it was possible to make an IEP with them. They replied that there were no need to write one and a certificate for medicines and prescriptions would be sufficient. I'm a little stressed by this ...
Cross infection Pseudomonas aeruginosa
Hello I am afraid of my daughter catching a pseudomonas infection in our cystic fibrosis center. The policy at the clinic does not separate patients with pseudomonas from patients without pseudomonas. Is this ok and what is recommended on other clinics? A concerned parent
School Canteen
Hello, My daughter will start kindergarten in September. She has Cystic Fibrosis. I work and my daughter will go to the canteen and then I wondered if the canteen meals were adequate (Calories, fats and salt). If not, are packed lunches as those that already exist for children with allergy, a ...
Going to kindergarten or school with MRSA?
Hello, My son (CF) is 25 months old now and has been MRSA positive again and again since he was 3 months old. There have been several eradication attempts, various iv therapies, antibiotics inhalation, and continuous oral therapy with co-trimoxazole. He is then negative for a few months and ...
Great concern – requesting an answer
Dear expert team, A friend of mine has CF. She now has the following germs in her sputum: high counts of Pseudomonas fluorescens, Burkh. gladioli, Enterobacter, Candida albicans, and masses of Haemophilus parainfluenzae. The Burkh. gladioli had been detected often before. The Pseudomonas is new. ...
Steiner schools
Hello, what do you think about education of a child with cystic fibrosis in a Steiner school? The concept of freedom and openness could be a disadvantage in terms of hygiene and precautions against germs? Thank you
When to start school ?
Hello, In case is it possible, having the idea to spare infections, what do you think about the balance benefit/ risk to delay the beginning of school for a CF child when it is 4? Thank you
normal school
We have learned after the discovery of significant bronchiectasis that our 8 year old son has cystic fibrosis. We find this news hard and I ask myself a lot of questions, especially if he can continue his schooling normally by knowing he eats in the canteen and stays at school after the normal ...
Protective isolation or contact isolation ?
Hello, Currently studying second year of nursing school, I have completed an internship in pediatrics where patients with cystic fibrosis were present due to exacerbation. I noticed that they were isolated and I can not find on any official website (HAS for example) what the kind of isolation is: ...
Working with clay at day care allowed with CF?
Hello, In our daughter’s (3 years old, CF) day care, a corner will be set up where the children can work with clay by themselves. Since clay has to be kept humid, I am now wondering whether this is suited for her. Do you see any objections concerning germ formation, particularly of PA? Many ...
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