My son (19 years old) suffers from CF since birth, including cirrhosis of the liver, pancreatic insufficiency, since 2002 diabetes - still on tablets - colonization with Pseudomonas, since 2006 colonization with Burkholderia cepacia - 2-3 times a year i.v. therapy. In September 2006 he started a ...
Convalescent care with MRSA
How do I get convalescent treatment despite the suffering from MRSA? My nine years old daughter has CF, PSA probably since she was born, MRSA since two years. We, the parents, are physically and mentally down, our nine years old is overstrained by this situation and her school marks have ...
Several children suffering from CF in the kindergarten
Dear expert team, I got the question from a kindergarten, if there is no risk in having two children suffering from CF (one 3 years old, the other one 5 years old, not related) in the same kindergarten (different groups, but no strict separation). Parents and nursery school teachers are worrying ...
Normal kindergarten and nevertheless individual integration
Hello, my 21-month-old son is going to be reintegrated into a normal kindergarten. He already visited a normal kindergarten before we knew the diagnosis of Cystic Fibrosis and we as parents and our son liked it very much. The he could not visit the kindergarten for a certain time because of ...
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