Topics

First time Burkholderia
My son, 37, has had for the first time Burkholderia multivorans 10^3 in the sputum. Besides Pseudomonas for decades. Does one observe this at first closely respectively is there any general procedure? He takes azithromycin and inhales every 4 weeks colistin respectively aztreonam alternating.
12.02.2015
Sputum Cytology Examination (SCE)
Hello, My little son, aged 5, had no sputum culture for several months. Indeed, during the last 3 controls in his CF center, no sample of sputum was possible (nothing back). If during the next visit no sample can be obtained, what is going to happen? How do we know that there is no ...
12.02.2015
Burkholderia
Appeared for the first time in the sputum - where did I get it from?
12.02.2015
Meaning of germs
Dear expert team, our daughter (5-years old) has CF and until now she is doing well. We just had again the big annual investigation at our center (lung function 106%). The result of the throat swab was the following: Moraxella catarrahlis Klebsiella oxytoca Staph. aureus In parallel to the ...
07.02.2015
Stenotrophomonas
Hello, in my household there are 2 peole suffering from CF, one of whom has been infected with Stenotrophomonas. My question, how does the other one have to react in order not to get infected? With my best regards, K.
14.01.2015
Chronic colonization with Staphylococci
Dear expert team! Request for help for a very worried mother: my daughter (16 years old) had until about one year ago, a very good lung function (97%) and a very good general condition. As she is also an extreme allergic patient, one has the creeping worsening of the lung function not ...
17.12.2014
Acinetobacter baumanii
Hello, I have been informed from my CF center via the telephone, to have the above mentioned germ. It would be well treatable with Cotrimoxazole respectively with Colistin per inhalation. As I have no other symptoms except my chronic inflammation of the sinuses, that is always severe in this time ...
17.12.2014
Stenotrophomonas maltophilia
Hello, We learned one month after birth that our 4 months-old daughter was diagnosed with CF. She carries the DF508 and G3272-26A mutations. She is followed up every month at the CF Center X, has respiratory physiotherapy every day and is currently pancreatic sufficient. My question is, we just ...
03.12.2014
Carpet and picking mushrooms in the forest
Hello I’d like to know what is better in a room for a child with cystic fibrosis: carpet or linoleum like plastic soil? And I'd would like to know if it's dangerous to pick mushrooms in the forest with the Pseudomonas or other bacteria present in the ground and moisture? Thank you
03.12.2014
Mycobacteria
Hello, My 6 year old son just had a sputum culture that shows the presence of mycobacteria. I wished to have more information on this germ and whether my son will have this germ all the life as I gather that it is resistant to antibiotics. Also I'd like to know where is the research regarding ...
03.12.2014
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