Pregnancy and CF
Hello, I have an urgent question. I am 26-years-old and weigh 54kg. I only inhale with hypertonic saline 6% 2-3 times a day and use salbutamol spray 2 times a day. Additionally, I take Kreon. I got pregnant with the permission of my CF physician via in-vitro fertilization. My lung function was ...
Hello, Could you tell me, in the context of cystic fibrosis, indications that lead to consider endoscopy of the lungs in children? Is there an interest for non-expectorating children? What are the expected benefits? The potential risks? Is it an increased risk of infection with Pseudomonas ...
Blood in the sputum
Dear expert team, Pseudomonas aeruginosa has been found in my sputum. Already a few months ago, I did inhalations with Colistin (2 x 1 Mio). I tolerated the inhalations well. The health condition improved. As Pseudomonas has soon been found again, we decided to do a 3 months eradication therapy ...
Hello, My 5-year-old CF daughter has very big coughing fits when she wakes up and the rest of the day she does not almost cough. Her mattress is lifted, the physio says that it is very high (not down in lungs) and her bacteriological exam is negative. Do we have to establish particular ...
Hello, I wanted to know if bronchiectasis causes death? Is that nowadays it cannot be treated relatively well? Thank you for your reply Best regards
Pulmonal damage
Hello, In case a child with CF can nearly never expectorate sputum after inhalation of 6% hypertonic saline, and also otherwise there are no problems with cough or the airways, can one then assume, that the lung is not as strongly involved by the CF? Is it true that there are in general two ...
Childhood diseases
Hello, My 3.5-year-old son started school in September and since he had 5 ear infections, laryngitis, some colds, a little bronchitis, gastro ... his cough occurs almost daily (with ups and downs, sometimes the day, sometimes the night, sometimes all the time ...). How can we know if he is ...
Vicks VapoRub®
My 3-year-old daughter suffers a little from congestion. She has an antibiotics and budesonide treatment. I wanted to know if products such as Vicks VapoRub® are banned or dangerous, as well as such as syrups, because her nocturnal cough wakes her and I would like to have a relief.
Enterobacter chloacae and Serratia marcescenz and S. liquefaciens
Dear expert team, I suffer from CF and I am Pseudomonas negative and have again and again the above mentioned germs in the sputum. Where can one get those bacteria from, they are intestinal germs, aren’t they? The FEV1 value is stable, however I cough more and have difficulties in bringing up ...
bronchial stent
This morning, I saw on TV that it is possible to put a bronchial stent which allows to increase respiratory function and avoid oxygen therapy for some respiratory diseases. I have oxygen and I ask for the possibility of this treatment in cystic fibrosis.
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