Topics

Humid sulfur rooms - treatment of pseudomonas or other bacterias
First of all I would like to tell that I have son with CF, 2 y.o. He had pseudomonas 1 year ago, treated succesfully but now he has pseudomonas again. Waiting for 2nd phase of treatment in the hospital. I want to tell another thing:I visited in Sicilia, Italia, Terme di Sciacca. I spoke to the ...
30.08.2011
Composition and effects of Creon (Pancreatine)
Does Creon (Pancreatine) only help the digestion of fat or also when the pancreas does not produce enough enzymes to digest proteins (azotorrhea)? I clarify the question: if you can explain us how it runs, according to the pH level and what about the possible interest of adding some vegetal ...
12.07.2011
Cystic Fibrosis : interest of probiotics, prebiotics
What are the dietetic approaches about probiotics & prebiotics in cystic fibrosis (for baby, child, teenager, adult), given that there are different types depending on whether the patient can chew or not, eat more vegetables, or meat, is on antibiotics etc ... ? We heard about the use of ...
05.07.2011
Bronchiectasis, bleeding
Hello, I suffer from CF and also have bonchiectasis. I am 22 years old. I recently had an infection. I also have Pseudomonas aerugionsa. From the 10th january to the 23rd february I took antibiotics. During this time I coughed up also bood sometimes. Therefore I took for 8 days Dicynon® ...
15.04.2011
Klebsiella pneumoniae
My son is 7 month old now. The diagnosis has been made in November 2010 after a really severe phase with atelectasis and pneumonia. After that and until now he is doing obviously fine and he is even overweight. Since then we gave him prophylactically ampicillin and sulbactam. At the end of january ...
14.04.2011
Essential oil
Hello, I am the mother of 2 children. A 5 year old boy and a 2 year old daughter with cystic fibrosis. I am a supporter of essential oils and use them to treat (and also prevent) my son since he is 2 (because it is too strong to be in contact with the skin earlier) eather in massages (with vegetal ...
09.12.2010
Schuessler salts in addition to traditional medicine
Dear expert team, one always strives to do the best for one's child and against CF. Now my question: can it be reasonable to draw on naturopathic treatment in addition to traditional medicine, or will there not be a positive effect? I actually am someone who does not really believe in it, but if ...
07.09.2010
Cannabis preparations
BV Bedrocan Cannabis is a dutch company producing cannabinol preparations in form of drugs. I would like to know your opinion concerning the treatment of CF patients with these drugs using Vaporiser (wet inhalation without burning process) or as an oral treatment. Is this treatment option available ...
01.02.2010
herbal preparations
Are there any advantages for CF children when using ALVEO preparation?
29.12.2009
colloidal silver
Can colloidal silver be used in the fight of bacteria in case of CF and can it also be inhaled?
05.11.2009
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